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41. Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available tools

Author:: Mayland, C. R., Sunderland, K. A., Cooper, M., Taylor, P., Powell, P. A., Zeigler, L., Cox, V., Gilman, C., Turner, N., Flemming, K., and Fraser, L. K.
Publication year:: 2022
DOI:: 10.1177/02692163221105599

42. Measures for social support in raising a child with a disability: A scoping review

Author:: Mantri-Langeveldt, A., Dada, S., and Boshoff, K.
Publication year:: 2019
DOI:: 10.1111/cch.12646

43. Outcome Measures Following Critical Illness in Children With Disabilities: A Scoping Review

Author:: Heneghan, J. A., Sobotka, S. A., Hallman, M., Pinto, N., Killien, E. Y., Palumbo, K., Murphy Salem, S., Mann, K., Smith, B., Steuart, R., Akande, M., and Graham, R. J.
Publication year:: 2021
DOI:: 10.3389/fped.2021.689485

44. Upper limb function in everyday life of children with cerebral palsy: description and review of parent report measures

Author:: Wallen, Margaret and Stewart, Kirsty
Publication year:: 2015
DOI:

45. A psychometric appraisal of positive psychology outcome measures in use with carers of people living with dementia: a systematic review

Author:: Pione, R. D., Spector, A., Cartwright, A. V., and Stoner, C. R.
Publication year:: 2021
DOI:: 10.1017/s1041610220003464

46. Instruments to measure interaction of mothers and newborns: A systematic review

Author:: Nascimento, T. F., Bocchi, S. C. M., Trenado, R. M., Cerezo, M. A., and Jensen, R.
Publication year:: 2023
DOI:: 10.1016/j.infbeh.2023.101825

47. Patient-reported Outcome Measures (PROMs) in Pediatric Non-Malignant Hematology: A Systematic Review

Author:: Kinahan, J. Y., Graham, J. M. I., Hébert, Y. V., Sampson, M., O'Hearn, K., and Klaassen, R. J.
Publication year:: 2020
DOI:: 10.1097/mph.0000000000001984

48. A Systematic Review of the Psychosocial Measures Used in Teenage and Young Adult Cancer

Author:: Hughes, K., Blackett, L., Jacobson, C. E. H., Henley, S. M. D., and Carr, E.
Publication year:: 2023
DOI:: 10.1089/jayao.2023.0051

49. Patient-reported outcome measures suitable for quality of life/well-being assessment in multisectoral, multinational and multiperson mental health economic evaluations

Author:: Łaszewska, A., Helter, T. M., Nagel, A., Perić, N., and Simon, J.
Publication year:: 2022
DOI:: 10.1136/ebmental-2021-300334

50. Implementation of patient-reported outcome measures in a heart transplant recipient registry: First step toward a patient-centered approach

Author:: Mahmoudi, R., Moitie, T., Dorent, R., Guillemin, F., and Couchoud, C.
Publication year:: 2022
DOI:: 10.1111/ctr.14708