COSMIN database

A structured review of outcome measures used for the assessment of rehabilitation interventions for spinal cord injury

Authors:
Dawson, J., Shamley, D., and Jamous, M. A.
Abstract:
Objectives: To review the measurement properties of outcome measures of function or mobility currently used in the context of spinal cord injury (SCI). Methods: A keyword search of multiple databases to identify original papers. Papers were reviewed where they had included an evaluation, of people with SCI, of the psychometric properties of an outcome measure, which included functional or mobility domains.Information was extracted concerning item generation, ease and intended method of use and scale properties, in particular: reliability, validity and responsiveness. Conclusions were reached concerning the psychometric properties of each instrument. Results: Eight outcome measures were identified (plus adapted versions). Five had originally been developed specifically for evaluating patients with SCI (chiefly reflecting clinicians' perspectives), the remaining three had not. The psychometric properties of the instruments varied, with some mixed/contradictory evidence likely relating to differing study sample sizes, characteristics and variable quality. Instruments also varied in stated purpose or emphasis. Conclusion: In addition to weighing evidence concerning measurement properties, users need to consider the stated purpose and item content of instruments in relation to their specific aims. With regard to the former, while reviewed instruments had some flaws, the Spinal cord Independence Measure (revised version III), Quadriplegia Index of Function (Short-form), Needs Assessment Checklist and SIP68 appeared the best, despite limited evidence of their responsiveness.
DOI:
10.1038/sc.2008.50
URL:
<Go to ISI>://WOS:000261406400002
https://www.ncbi.nlm.nih.gov/pubmed/18521096
Journal:
Spinal Cord
issn:
1362-4393
Publication year:
2008
pages:
768-780
Functional status:
Physical functioning
Age:
Adults (18-65)
Children (0-18)
Seniors (65+)
Disease:
Injury, poisoning and certain other consequences of external causes
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
2 - Interviews
5 - Videos
6 - Clinical rating scales
7 - Observations
Instrument:
BI - Barthel Index   [see: ZUYD (NL)]
FIM - Functional Independence Measure (Also modified version exists)
FIM phone - Functional Independence Measure by phone
MBI - Modified Barthel Index
NAC - Needs Assessment Checklist
QIF - Quadriplegia Index of Function
QIF-short - Quadriplegia Index of Function-Short form
SCI-FAI - Spinal Cord Injury Functional Ambulation Inventory
SCIM-III - Spinal Cord Independence Measure-revised
SCIM-II - Spinal Cord Independence Measure-revised
SCIM - Spinal Cord Independence Measure
SIP-68 - Sickness Impact Profile 68
WISCI - Walking Index for Spinal Cord Injury