COSMIN database

A review of health-related quality-of-life measures used in end-stage renal disease

Edgell, E. T., Coons, S. J., Carter, W. B., Kallich, J. D., Mapes, D., Damush, T. M., and Hays, R. D.
Health-related quality of life (HRQOL) is a critical issue in the treatment of endstage renal disease (ESRD) patients. The variety of symptoms, comorbidities, and treatments of ESRD over the course of its chronic disease trajectory necessitate comprehensive assessment of the impact of interventions on HRQOL. A literature review of ESRD HRQOL studies was performed to provide an overview of the instruments used and to provide recommendations for HRQOL assessment in future studies. Instruments were classified based on the health domains they assess and whether they are generic or disease targeted. The instruments were judged in terms of their comprehensiveness, reliability, and validity.
Doi 10.1016/S0149-2918(96)80049-X
<Go to ISI>://WOS:A1996VR30300012
Clinical Therapeutics
Publication year:
Symptom status:
Cognitive/mental state
Emotional state
Physical state
Functional status:
Role functioning
General health perceptions / HRQoL:
Health-related quality of life
Adults (18-65)
Seniors (65+)
Diseases of and symptoms related to the genitourinary system
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
2 - Interviews
6 - Clinical rating scales
ABS - Affect Balance Scale    | also see:
BDI - Beck Depression Inventory (versions: mBDI)   
Campbellā€™s Indices of General Affect, Well-Being, and Life Satisfaction;
IELC - Internal-External Locus of Control
IIRS - Illness Intrusiveness Rating Scale
ILS - Index of Life Satisfaction
Index of Co-morbidity
KDQ - Kidney Disease Questionnaire
KDQOL - Kidney Disease Quality of Life
KPS - Karnofsky Performance Scale (of: Status)
LCB - Locus of Control of Behavior scale.
MHLC - Multidimensional Health Locus of Control Scale   
MSF-36 - Modified Medical Outcomes Short Form 36
NHP - Nottingham Health Profile   
Parfrey Symptom Assessment
Perceived Control over Significant Life Domains scale
RSES - Rosenberg Self-Esteem Scale (versions: RSES-10)
SDS - Sexual Dysfunction Scale
SIP - Sickness Impact Profile   
TTO - Time Trade-Off