A Review of Validated Quality-of-Life Patient-Reported Outcome Measures in Pediatric Plastic Surgery
Authors:
Roller, J. M., Courtemanche, R. J. M., and Courtemanche, D. J.
Abstract:
BACKGROUND: There has been an exponential increase in the number of patient-reported outcome measures in plastic surgery. The authors reviewed the reliability, validity, and practicality of the most frequently used patient-reported outcome measures in pediatric plastic surgery research.
METHODS: A review of the literature from January of 2010 to June of 2015 was conducted to identify patient-reported outcome measures in pediatric plastic surgery. Patient-reported measures used in five articles with two validation studies were included for analysis and classified as generic, disease-specific, and mental health. The type of validation used and reliability scores were compared across each class of outcome measure. The practicality of each measure was determined by the frequency of use and the number of items and cost.
RESULTS: Of the 173 unique patient-reported outcome measures identified, 14 were included for analysis and classified as generic (n = 7), disease-specific (n = 4), and mental health (n = 3). The majority of all measures used construct validity. Disease-specific measures had the highest distribution of domains related to physical functioning, the same domain also found to have the highest reliability scores. A patient-reported outcome measure's frequency of use was not associated with its number of items or cost.
CONCLUSIONS: This review found that generic patient-reported outcome measures were used most often, construct validity was used most frequently, physical functioning domains had the highest reliability, and the number of items or cost of a patient-reported outcome measure was not related to its frequency of use. Considered together, this information may inform the future development or selection of patient-reported outcome measures in pediatric plastic surgery.
Cognitive/mental state Emotional state Physical state
Functional status:
Cognitive/mental functioning Physical functioning Role functioning Social functioning
General health perceptions / HRQoL:
Health-related quality of life Self-rated health
Overall quality of life:
Overall quality of life
Age:
Children (0-18)
Disease:
Congenital malformations, deformations and chromosomal abnormalities and related symptoms Diseases of and symptoms related to the circulatory system Diseases of and symptoms related to the musculoskeletal system and connective tissue Diseases of and symptoms related to the nervous system Diseases of and symptoms related to the skin and subcutaneous tissue Injury, poisoning and certain other consequences of external causes Mental and behavioural disorders and related symptoms Neoplasms and related symptoms
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