COSMIN database

A review of quality of life instruments used in dementia

Ettema, T. P., Droes, R. M., de Lange, J., Mellenbergh, G. J., and Ribbe, M. W.
Objective: To provide an overview of QOL measures applicable for research in dementia, the scale content, method of data collection, and their psychometric properties. Method: Literature research. Results: Six dementia-specific QOL measures were identified, eight generic measures were used in a demented population, and three dementia-specific measures related to QOL are described as well. Measures vary considerably in scale content, and method of data collection. Reliability indexes were always available, support of instrument validity was often reported, but reports of responsiveness to change were found only for two dementia-specific QOL measures. Conclusion: When the interest is primarily on people with dementia, a dementia-specific instrument is to be preferred. Further clarification of the concept of QOL and particularly its relation to disease severity is required.
DOI 10.1007/s11136-004-1258-0
<Go to ISI>://WOS:000230310700009
Quality of Life Research
Publication year:
Overall quality of life:
Overall quality of life
Adults (18-65)
Seniors (65+)
Mental and behavioural disorders and related symptoms
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
2 - Interviews
4 - Performance-based tests
6 - Clinical rating scales
7 - Observations
ADRQL - Alzheimer’s Disease Related Quality of Life
CBS - Cornell–Brown Scale for Quality of Life in Dementia
DCM - Dementia Care Mapping   
D-QOL - Dementia Quality of Life instrument
DS-DAT - Discomfort Scale –Dementia of Alzheimer Type
HSQ - Health Status Questionnaire
HUI-2 - Health Utilities Index Mark 2
HUI-3 - Health Utilities Index-Mark 3
NHP - Nottingham Health Profile   
Pleasant Events Schedule AD - Pleasant Events Schedule Alzheimer's Disease
Positive Response Schedule
QOL-AD - Quality of Life in Alzheimer’s Disease (versions: QOL-AD NH - Nursing Homes)
QOLAS - Quality of Life Assessment Schedule
QOL-D - Quality of Life for Dementia
SEIQoL - Schedule for the Evaluation of Individual Quality of Life (versions: SEIQoL-DW - SEIQoL Direct Weighting)
SF-12 - 12-item Short Form Health Survey [alias: RAND-12]
WHOQOL - World Health Organization Quality of Life Assessment (versions: WHOQOL-26)