Physical performance outcome measures used in exercise interventions for adults with childhood-onset disabilities: A scoping review
- Authors:
- Song, J. Z., Catizzone, M., Arbour-Nicitopoulos, K. P., Luong, D., Perrier, L., Bayley, M., and Munce, S. E. P.
- Abstract:
- BACKGROUND: People with childhood-onset disabilities face unique physical and social challenges in adulthood. Exercise interventions may improve physical performance in children, but there is a lack of research on adults.
OBJECTIVE: To describe studies that investigate exercise interventions and to evaluate the quality of physical performance outcome measures for adults with childhood-onset disabilities.
METHODS: Eligible studies reported on exercise interventions for adults (ages 16+) with cerebral palsy, spina bifida, or acquired brain injuries. Only randomized controlled trials published in English from 2008 to 2019 were included. MEDLINE, CINAHL, PEDro, EMBASE, and Cochrane Central Register of Controlled Trials were searched. Two reviewers independently screened studies and abstracted data.
RESULTS: This scoping review included 4 trials reporting on cerebral palsy only. Three strength training programs found significant improvements in gait, and one mixed training program found significant improvements in strength and fitness. Only two outcome measures used are valid/reliable for adults (6 Minute Walk Test and Borg-20 Grades).
CONCLUSION: Certain interventions may improve physical performance, but there is a lack of research on appropriate exercise interventions and physical performance outcome measures for adults with childhood-onset disabilities. Different exercise interventions should be investigated using larger sample sizes and outcome measures should be standardized. - DOI:
- 10.3233/nre-203250
- URL:
- https://content.iospress.com:443/download/neurorehabilitation/nre203250?id=neurorehabilitation%2Fnre203250
- Journal:
- NeuroRehabilitation
- issn:
- 1053-8135
- Publication year:
- 2020
- pages:
- 359-380
- Biological and physiological variables:
- Biological and physiological variables
- Symptom status:
- Physical state
- Functional status:
- Physical functioning
- Age:
- Adults (18-65)
- Disease:
- Certain conditions originating in the perinatal period and related symptoms
Diseases of and symptoms related to the nervous system - PRO / non-PRO:
- Non-patient Reported Outcome
Patient Reported Outcome - Type of measurement instrument:
- 4 - Performance-based tests
6 - Clinical rating scales - Instrument:
- 10MWT - 10 Meter Walk Test (versions: 10MWT under single- and dual-task condition)
10RM - 10 Repetition Maximum (versions: 8RM)
1RM - One Repetition Maximum
6MWT - 6 Minute Walk Test (versions: 6MWT app; 6MWT Lite app; M6MWT - Modified 6MWT; 6mWTPC - 6MWT on parquet and carpet)|
| also see: database.cosmin.nl
Borg (RPE) Scale - Borg Rating of Perceived Exertion Scale (versions: mBORG)
FAQ - (Gillette) Functional Assessment Questionnaire
FMS - Functional Mobility Scale (versions: FMS-RS - FMS-Rett Syndrome)
GMFM - Gross Motor Function Measure (versions: GMFM-66; GMFM-high-functioning children module)
GPS - Gait Profile Score
MPST - Muscle Power Sprint Test
Sit to stand 10 times [alias: TST - Timed Stands Test]
Sprint Tests (Repeated; 5m; 10m, 15m; 20m; 25m; 40m; 60m; 10x5m)
TUDS - Timed Up-and-Down Stairs