Living with Chronic Illness from the Family Perspective:An Integrative Review

Authors:
Ambrosio, L., Navarta-Sánchez, M. V., Carvajal, A., and Garcia-Vivar, C.
Abstract:
Living with chronic illness has an impact on the family's wellbeing and quality of life. An integrative review was conducted to identify and analyse the existing scales that evaluate the process of living with chronic illness or related factors of daily living from the family perspective. A search was developed in Medline, CINAHL, PsycINFO, Cochrane Library, Cuiden and Scielo databases until May 2019. From 5,344 identified articles, 13 studies were eligible for inclusion. 16 scales were identified and assessed constructs related to the concept of living with chronic illness, including quality of life; perceptions and needs; life satisfaction and well-being; impact; and psychological adjustment to the disease. However, these scales do not measure the family process of living with chronic illness from a comprehensive perspective. This review highlights the need to develop and validate a scale that evaluates the multidimensional nature of living with chronic illness from the family perspective.
DOI:
10.1177/1054773820947983
URL:
https://journals.sagepub.com/doi/pdf/10.1177/1054773820947983
Journal:
Clin Nurs Res
issn:
1054-7738
Publication year:
2020
pages:
1054773820947983
Overall quality of life:
Overall quality of life
Age:
Adults (18-65)
Disease:
Codes for special purposes
Diseases of and symptoms related to the circulatory system
Diseases of and symptoms related to the nervous system
Diseases of and symptoms related to the respiratory system
Neoplasms and related symptoms
PRO / non-PRO:
Non-patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
Instrument:
Caregivers Needs Scale
CIS - Caregiving Impact Scale
CQOLC - Caregiver Quality of Life Index–Cancer (versions: CQOLC-LT - CQOLC-Liver Transplant)
CQOLCF - Caregiver Quality of Life Cystic Fibrosis
CQOLI - Caregiver Quality of Life Index (versions: CQOLI-R)
CRA - Caregiver Reaction Assessment   
CWBS - Caregiver well-being scale
CWS - Carer Well-being and support questionnaire
FAMQOL - Family Caregiver Quality of Life Scale
FNA - Family Needs Assessment
Impact of Alzheimer’s Disease on Caregiver Questionnaire
IPQ - Illness Perceptions Questionnaire (versions: M-IPQ; IPQ-R; IPQ-R BCRL - IPQ-R-breast cancer-related lymphoedema; B-IPQ/BIPQ - Brief-IPQ; IPQ-Schizophrenia; BIPQ-P - BIPQ-Physician point of view; IPQ-RDE - IPQ Revised for Dental Use in Older/Elder Adults)   
PAIS - Psychosocial Adjustment to Illness Scale (versions: PAIS-SR - PAIS-Self Report)
QLI - Quality of Life Index [alias: Ferrans and Powers Quality of Life Index] (versions: QLI-III; QLI-D - QLI-Dialysis; QLI-CV - QLI-Cancer Version; QLI-Cardiac Version; QLI-WV - QLI Wound version)
SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: MOS SF-36]] (versions: VSF-36 LoA - Visual Version of the SF-36 Limitations of Physical Activities domain; VR-36 - Veterans SF-36)    |  | also see: database.cosmin.nl

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