Quality of life instruments and definitions in individuals with spinal cord injury: a systematic review
- Hill, M. R., Noonan, V. K., Sakakibara, B. M., Miller, W. C., and Team, Scire Research
- STUDY DESIGN: A systematic review.
OBJECTIVE: To critically review quality of life (QOL) instruments used with spinal cord injury (SCI) populations.
SETTING: Vancouver, Canada.
METHODS: A systematic literature review was conducted for publications assessing the measurement properties of QOL outcome measures. Pre-established criteria were used to evaluate the measurement properties.
RESULTS: Fourteen articles reporting on 13 QOL instruments met the inclusion criteria, including the Patient Reported Impact of Spasticity Measure (PRISM), Quality of Well-being Scale, Qualiveen, Sickness Impact Profile (SIP68), Short Form (SF)-36, SF-36V, SF-12, SF-6D, Quality of Life Index, Quality of Life Profile for Adults with Physical Disabilities (QOLP-PD), Satisfaction with Life Scale, Sense of Well-being Index (SWBI), and the World Health Organization Quality of Life-BREF scale (WHOQOL-BREF). The SF-36 and WHOQOL-BREF have been widely used and validated. The SIP68, QOLP-PD, SF-36V, and SWBI are promising with limited investigation. The Qualiveen and PRISM performed well and are specific to SCI complications.
CONCLUSION: The WHOQOL-BREF is presently the most acceptable and established instrument to assess QOL after SCI. The SIP68, QOLP-PD, SF-36V, and SWBI are promising; however, require further evaluation of their measurement properties.
- Spinal Cord
- 1476-5624 (Electronic)
- Publication year:
- Symptom status:
- Cognitive/mental state
- Functional status:
- Physical functioning
- General health perceptions / HRQoL:
- Health-related quality of life
- Adults (18-65)
- Injury, poisoning and certain other consequences of external causes
- PRO / non-PRO:
- Patient Reported Outcome
- Type of measurement instrument:
- 1 - Questionnaires
2 - Interviews
- PRISM - Patient Reported Impact of Spasticity Measure
QOLI - Quality of Life Index
QOLP-PD - Quality of Life Profile-Physical Disabilities
QWB - Quality of Well-Being Scale
SF-12 - 12-item Short Form Health Survey [alias: RAND-12]
SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: Medical Outcomes Study (MOS) SF-36]] | | also see: database.cosmin.nl
SF-36-V - 36-item Short Form Health Survey-Vitality subscale
SF-6D - Short-Form 6D (derived from SF-36 or F-12)
SIP-68 - Sickness Impact Profile 68
SWBI - Sense of Well-Being Index
SWLS - Satisfaction With Life Scale
WHOQOL-BREF - World Health Organization Quality of Life questionnaire–Abbreviated Questionnaire [alias: WHO-QOL BREF]