Patient-Reported Outcome and Experience Measures Administered by Dietitians in the Outpatient Setting: Systematic Review
- Abstract:
- Understanding how patients perceive their health and the experience with the dietitian is fundamental to providing patient-centred care. The types of patient reported measures (PRMs) used by outpatient dietitians is unclear. Guidance about use of PRMs for dietitians is also lacking. The aim of this systematic review was to synthesise evidence regarding the use of PRMs by dietitians in the outpatient setting and evaluate the methodological quality of studies evaluating the psychometric properties of PRMs. Eight databases were searched systematically for studies of dietitians working in the outpatient setting and administering a PRM. Forty-four studies were evaluated and described 58 different PRMs. These included direct nutrition related (n = 12 studies), clinical (n = 21 studies), and health-related quality of life PRMs (n = 24 studies); 1 study documented use of a patient-reported experience measure. A large range of PRMs are used by outpatient dietitians. Of the most common PRMs, the majority are administered in similar populations to the original validation study. Dietitians should use a combination of 3 PRMs: a generic health-related quality of life tool, an experience measure, and at least 1 clinical or direct nutrition-related measure. This will enable dietitians to fully capture the impact of their care on patients.
- DOI:
- 10.3148/cjdpr-2021-036
- Journal:
- Can J Diet Pract Res
- issn:
- 1486-3847 (Print)
- Publication year:
- 2022
- pages:
- 1-11
- Symptom status:
- Physical state
- General health perceptions / HRQoL:
- Health-related quality of life
- Age:
- Adults (18-65)
Children (0-18)
Seniors (65+) - Disease:
- Codes for special purposes
Diseases of and symptoms related to the digestive system
Endocrine, nutritional and metabolic diseases and related symptoms
Mental and behavioural disorders and related symptoms
Neoplasms and related symptoms - PRO / non-PRO:
- Patient Reported Outcome
- Type of measurement instrument:
- 1 - Questionnaires
- Instrument:
- Appetite and Diet Assessment Tool
BDI - Beck Depression Inventory (versions: mBDI; BDI-Y; BDI-SF)
BSFS - Bristol Stool Form Scale
Carbohydrate exchange deviation score
CAS - Constipation Assessment Scale (versions: CAS-M)
CES-D - Centre for Epidemiologic Studies-Depression Scale (versions: CES-D-R; CES-D-8; CES-D 9; CES-D-10; CES-D-11; CES-D-13; CES-D-15; CES-D-20; CES-D-Children; CES-D-SF; CES-D m)
Delmater adherence score
Diabetes Satisfaction Survey
Dietary Sodium Restriction Adherence Questionnaire
Diet Habit Survey
DSQOLS - Diabetes Specific Quality of Life Scale
Eating Patterns Questionnaire
EDI - Eating Disorders Inventory (versions: EDI-2; EDI-3)
EORTC QLQ-C30 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Core-30 item (versions: EORTC QLQ-C24; EORTC QLQ-C30-v1; EORTC QLQ-C30-v2; EORTC QLQ-C30v3)
EQ-5D-3L - euroQoL 5-dimension 3-level
ESAS - Edmonton Symptom Assessment System (versions: M-ESAS for critically ill; ESAS-PD - ESAS-Parkinson's Disease; M-ESAS; ESAS-R)
FACIT - Functional Assessment of Chronic Illness Therapy
FIS / FFSS - Fatigue Impact Scale (FIS) or Fisk Fatigue Severity Score (FFSS) (versions: D-FIS or FIS-D - FIS for daily use; U-FIS - Unidimensional FIS)
Food Security Questionnaire
FOSQ - Functional Outcomes of Sleep Questionnaire (versions: FOSQ-10)
GIQLI - Gastrointestinal Quality of Life Index
GSRS - Gastrointestinal Symptom Rating Scale
HADS - Hospital Anxiety and Depression Scale
HM - Happiness Measures
IBSQOL - Irritable Bowel Syndrome Quality of Life questionnaire
IBS-SSS - Irritable Bowel Syndrome Severity Scoring System
Impact of Weight Loss Scale
Karolinska Sleep Questionnaire
KetoQOL tool
Kings Stool Chart
Knowledge Attitudes Practice Score
KPS - Karnofsky Performance Scale (of: Status)
Major Life Events Scale
MFI - Multidimensional Fatigue Inventory (versions: MFI-20; MFI-SF)
MOS-SF - Medical Outcome Study Short-Form General Health Survey (versions: MOS-19; MOS-20; MOS-24)
Multi-attribute Health Status Classification Scheme QOL measure
Night Eating Syndrome Scale
Nutrition Knowledge Score
Obesity and Weight Loss Quality of Life
Obesity Beliefs Scale
Obesity Quality of Life Tool
Obesity Risk Knowledge – 10 scale
PHQ - Patient Health Questionnaire (versions: PHQ-2; PHQ-4; PHQ-8; PHQ-9; PHQ-9 short; aPHQ-9; PHQ-A; PHQ-22; PHQ-8; PHQ-15)
Physical Activity Statewide Questionnaire
Play Performance Scale QOL measure
Quality of Life Related to Dietary Change Questionnaire
RSCL - Rotterdam Symptom Checklist (versions: RSCL-M)
SCL-90 - Symptom Checklist-90 (versions: SCL-92)
SF-12 - 12-item Short Form Health Survey [alias: RAND-12] (versions: SF-12v2; VR-12 - Veterans SF-12; SF-12 MCS; SF-12 PCS)
SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: MOS SF-36]] (versions: VSF-36 LoA - Visual Version of the SF-36 Limitations of Physical Activities domain; VR-36 - Veterans SF-36)
| | also see: database.cosmin.nl
STPI - State Trait Personality Inventory
SVS - Subjective Vitality Scale
TFEQ - Three Factor Eating Questionnaire
Two question depression screening instrument
United States Department of Agriculture abbreviated six item Food Insecurity Tool
VAS - Visual Analogue Scale (versions: vertical; horizontal)
VSI - Visceral Sensitivity Index