COSMIN database

Initial Report of the Cancer Patient-Reported Outcomes Measurement Information System (PROMIS) Sexual Function Committee Review of Sexual Function Measures and Domains Used in Oncology

Authors:
Jeffery, D. D., Tzeng, J. P., Keefe, F. J., Porter, L. S., Hahn, E. A., Flynn, K. E., Reeve, B. B., and Weinfurt, K. P.
Abstract:
For this report, the authors described the initial activities of the Cancer Patient-Reported Outcomes Measurement Information System (PROMIS)-Sexual Function domain group, which is part of the National Institutes of Health Roadmap Initiative to develop brief questionnaires or individually tailored assessments of quality-of-life domains. Presented are a literature review of sexual function measures used in cancer populations and descriptions of the domains found in those measures. By using a consensus-driven approach, an electronic bibliographic search was conducted for articles that were published from 1991 to 2007, and 486 articles were identified for in-depth review. In total, 257 articles reported the administration of a psychometrically evaluated sexual function measure to individuals who were diagnosed with cancer. Apart from the University of California-Los Angeles Prostate Cancer Index, the International Index of Erectile Function, and the Female Sexual Function Index, the 31 identified measures have not been tested widely in cancer populations. Most measures were multidimensional and included domains related to the sexual response cycle and to general sexual satisfaction. The current review supports the need for a flexible, psychometrically robust measure of sexual function for use in oncology settings and strongly justifies the development of the PROMIS-Sexual Function instrument. When the PROMIS-Sexual Function instrument is available publicly, cancer clinicians and researchers will have another measure with which to assess patient-reported sexual function outcomes in addition to the few legacy measures that were identified through this review. Cancer 2009;115:1142-53. (C) 2009 American Cancer Society.
DOI:
10.1002/cncr.24134
URL:
<Go to ISI>://WOS:000264148300005
https://www.ncbi.nlm.nih.gov/pubmed/19195044
Journal:
Cancer
issn:
0008-543x
Publication year:
2009
pages:
1142-1153
Symptom status:
Cognitive/mental state
Emotional state
Physical state
Functional status:
Cognitive/mental functioning
Physical functioning
Overall quality of life:
Overall quality of life
Age:
Adults (18-65)
Seniors (65+)
Disease:
Neoplasms and related symptoms
PRO / non-PRO:
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
Instrument:
ASEX - Arizona Sexual Experiences Scale
BISF-W - Brief Index of Sexual Functioning for Women
BSFI - Brief Sexual Function Inventory
BSFQ - Brief Sexual Function Questionnaire for Men
CSFQ - Changes in Sexual Functioning Questionnaire (Also: CSFQ-14 - 14 item version)
DISF(-SR) - Derogatis Interview for Sexual Functioning(-Self Report)
DSFI - Derogatis Sexual Functioning Inventory
ED-EQoL - Erectile Dysfunction-Effect on Quality of Life
FSFI - Female Sexual Function Index (and FSFI-BC - Breast Cancer)
GRISS - Golombok Rust Inventory of Sexual Satisfaction
ICS male
ICSsex - International Incontinence Society Sex Questionnaire
IFSF - Index of Female Sexual Function
IIEF-5 - International Index of Erectile Function-5 item
IIEF - International Index of Erectile Function
MOS-SFS - Medical Outcomes Study-Sexual Functioning Scale
Patient EDITS - Erectile Dysfunction Inventory of Treatment Satisfaction-patient version
PIED - Psychological Impact of Erectile Dysfunction
RTOG SAQ-H - Radiation Therapy Oncology Group Sexual Adjustment Questionnaire modified
SAI - Sexual Arousability Inventory (Also SAI-E - expanded version)
SAQ - Sexual Activity Questionnaire
SAQ - Sexual Adjustment Questionnaire
SBIQ - Sexual Beliefs and Information Questionnaire
SFAGIS - Sexual Function After Treatment for Gynecologic Cancer
SFIQ - Sexual Function Inventory Questionnaire
SFQ - Sexual Function Questionnaire
SHF - Sexual History Form
SHIM - Sexual Health Inventory for Men
SMUSFQ - Sapporo Medical University Sexual Function Questionnaire
SSES-EF - Sexual Self-Efficacy Scales in Erectile Functioning
SSES-FF - Sexual Self-Efficacy Scales in Female Functioning
SSSS - Sexual Self-Schema Scale
SVQ - Sexual function-Vaginal changes Questionnaire
UCLA-PCI-SF/SB - University of California Los Angeles-Prostate Cancer Index-Sexual Function/Sexual Bother
WSFQ - Watts Sexual Function Questionnaire