COSMIN database

Health-related quality of life measurement in women with common benign gynecologic conditions: a systematic review

Authors:
Jones, G. L., Kennedy, S. H., and Jenkinson, C.
Abstract:
Endometriosis, menorrhagia, chronic pelvic pain, and polycystic ovary syndrome are major sources of psychologic morbidity and can negatively affect quality of life. Although comparative studies have been published on the measurement of health-related quality of life for gynecologic malignancies, a similar review for these benign gynecologic conditions has not been conducted. Consequently, we searched the literature systematically to identify the impact of symptoms and treatments for these conditions on health status and to report on the types and psychometric properties of the instruments used. Papers were retrieved by systematically searching 6 electronic databases and hand-searching relevant reference lists and bibliographies. Forty-six studies used a questionnaire to measure health status: 34 studies (74%) used standardized instruments; of these, 23 studies (68%) used generic tools. Although a meta analysis was not possible, it appears that women with chronic pelvic pain and conditions that are associated with pelvic pain (such as endometriosis) report worse health-related quality of life. Despite the development of disease-specific questionnaires, only 2 questionnaires were generated from interviews of patients with the condition of interest, and few questionnaires are being used to evaluate the outcomes of treatment on subjective health status.
URL:
https://www.ncbi.nlm.nih.gov/pubmed/12193950
Journal:
Am J Obstet Gynecol
issn:
0002-9378 (Print)
Publication year:
2002
pages:
501-11
General health perceptions / HRQoL:
Health-related quality of life
Age:
Adults (18-65)
Disease:
Diseases of and symptoms related to the genitourinary system
PRO / non-PRO:
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
6 - Clinical rating scales
Instrument:
European Quality of life Scale
MOS long form - Medical Outcomes Study Long Form
NHP - Nottingham Health Profile   [see: ZUYD (NL)]
PGI - Patient General Index
PGWBI (Also: PGWBI-S) - Psychological General Well-Being index (Also: PGWBI-S - short form)
SF-12 - 12-item Short Form Health Survey
SF-36 - 36-item Short Form Health Survey   [see: proqolid, ZUYD (NL)]