Clinical research in pediatric plastic surgery and systematic review of quality-of-life questionnaires

Authors:
Klassen, A. F., Stotland, M. A., Skarsgard, E. D., and Pusic, A. L.
Abstract:
In the first part of this article, examples of different research designs used to study pediatric patients who undergo plastic surgery are described. The remainder of the article discusses the measurement of outcomes in pediatric plastic surgery research, with a particular focus on the assessment of quality of life (QOL). Issues specific to measuring QOL in children are discussed (eg, developmental considerations, use of self- versus proxy report). The results of a systematic literature review to identify and appraise pediatric plastic surgery condition-specific measures of QOL are presented.
DOI:
10.1016/j.cps.2007.10.004
URL:
https://www.ncbi.nlm.nih.gov/pubmed/18298997
Journal:
Clin Plast Surg
issn:
1558-0504 (Electronic)
Publication year:
2008
pages:
251-67
Symptom status:
Cognitive/mental state
Emotional state
Physical state
Functional status:
Physical functioning
Overall quality of life:
Overall quality of life
Age:
Children (0-18)
Disease:
Injury, poisoning and certain other consequences of external causes
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
6 - Clinical rating scales
Instrument:
BOQ - Burn Outcomes Questionnaire (versions: BOQ 0-5 years; BOQ 5-18 years; BOQ10-18 years; BOQ parent form 0-5 years; BOQ 5-18 years parent form; BOQ 11-18 adolescent form)
COHIP - Child Oral Health Impact Profile (versions: COHIP-SF; COHIP-Preschool)   
COHQoL - Child Oral Health Quality of Life (versions: COHQOL 6-14; COHQOL 11-14; COHQOL 8-10; COHQOL-SF 11-14)
HOBQ 0-4-parent - Dutch Health Outcomes Burn Questionnaire 0-4 years-parent form
PEEQ 8-18 child - Pectus Excavatum Evaluation Questionnaire 8-18 years child form
PEEQ 8-18 parent - Pectus Excavatum Evaluation Questionnaire 8-18 years parent form
PVRQOL - Pediatric Voice-Related Quality of Life survey
VOS - Voice Outcome Survey   
YQOL - Youth Quality of Life Instrument (versions: YQOL-DHH; YQOL-SF; YQOL-CS - Craniofacial Surgery; YQOL-FD - Facial Differences; YQOL-R - YQOL-Research; YQOL-S - YQOL-Surveillance; YQOL-W - Weight Module, 21)   

Tools