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Systematic review of health-related quality of life following thyroid cancer
Authors:
Walshaw, E. G., Smith, M., Kim, D., Wadsley, J., Kanatas, A., and Rogers, S. N.
Abstract:
This systematic review provides a summary of all studies published between 2000 and 2019 using a health-related quality of life (HRQOL) patient-completed questionnaire to report outcomes following diagnosis and treatment of thyroid cancer. The search terms were "thyroid cancer" or "thyroid carcinoma," "quality of life" or "health related quality of life," and "questionnaire" or "patient reported outcome." EMBASE, PubMed, Medline, PsycINFO, CINAHL, and HaNDLE-On-QOL search engines were searched between 2 February and 23 February 2020. A total of 811 identified articles were reduced to 314 when duplicates were removed. After exclusion criteria (not thyroid specific, no quality of life questionnaires, and conference abstracts) were applied, 92 remained. Hand searching identified a further 2 articles. Of the 94 included, 16 had a surgical, 26 a primarily medical, and 52 a general focus. There were articles from 27 countries. A total of 49 articles were published from 2015 through 2019 inclusive. A total of 72 questionnaires were used among the articles and a range of 7 to 2215 participants were included within each article. This review demonstrated an increasing number of publications annually. The scope of enquiry into aspects of HRQOL following thyroid cancer is broad, with relatively few addressing surgical aspects and many focusing on the impact of radio-iodine. More research is required into shared decision-making in initial management decisions and HRQOL and interventions aimed specifically at addressing long-term HRQOL difficulties.
DOI:
10.1177/03008916211025098
Journal:
Tumori
issn:
0300-8916 (Print)
Publication year:
2022
pages:
291-314
General health perceptions / HRQoL:
Health-related quality of life
Age:
Adults (18-65)
Disease:
Endocrine, nutritional and metabolic diseases and related symptoms
PRO / non-PRO:
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
Instrument:
AFI - Attentional Function Index ASC - Assessment of Survivor Concerns BDI - Beck Depression Inventory (versions: mBDI; BDI-Y; BDI-SF) BEPSI - Brief Encounter Psychosocial Instrument BFI - Brief Fatigue Inventory (versions: MBFI - ModiefiedBFI)) BIS - Body Image Scale (versions: mBIS; BIS adapted; BIS-R) CES-D - Centre for Epidemiologic Studies-Depression Scale (versions: CES-D-R; CES-D-8; CES-D 9; CES-D-10; CES-D-11; CES-D-13; CES-D-15; CES-D-20; CES-D-Children; CES-D-SF; CES-D m) CFS - Chalder Fatigue Scale [alias: FQ - Fatigue Questionnaire][alias: FRS - Fatigue Rating Scale] CSFQ - Changes in Sexual Functioning Questionnaire (Also: CSFQ-14) DLQI - Dermatology Life Quality Index DT - Distress Thermometer (versions: DT for parents) Emotion Thermometers EORTC QLQ-C30 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Core-30 item (versions: EORTC QLQ-C24; EORTC QLQ-C30-v1; EORTC QLQ-C30-v2; EORTC QLQ-C30v3) EORTC QLQ-THY - European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire-Thyroid Cancer Module (EORTC QLQ-THY34) EQ-5D - EuroQoL-5 Dimensions (versions: EQ5D-VAS; Patient-Reported Health Score; EQ-5D-Pso - EQ-5D-Psoriasis) FACIT-F - Functional Assessment of Chronic Illness Therapy- Fatigue Scale FACT-G - Functional Assessment of Cancer Therapy-General (versions: FACT-G7) FAS - Fatigue Assessment Scale FoP - Fear of Progression Questionnaire (FoP-Q-SF) FoR screening item GSSSAD - Goldberg Short Screening Scale for Anxiety and Depression HADS - Hospital Anxiety and Depression Scale HAM-D - Hamilton Rating Scale for Depression [alias: HAMD; HDRS; HRSD] (versions: HAM-D6; HAM-D17) HARS - Hamilton Anxiety Rating Scale [alias: HAM-A] Head and Neck Companion Module HUI-2 - Health Utilities Index Mark 2 HUI-3 - Health Utilities Index-Mark 3 ICQ - Illness Cognition Questionnaire (versions: ICQ-Infertility) Information, Support, and Care Delivery Needs IPQ - Illness Perceptions Questionnaire (versions: M-IPQ; IPQ-R; IPQ-R BCRL - IPQ-R-breast cancer-related lymphoedema; B-IPQ/BIPQ - Brief-IPQ; IPQ-Schizophrenia; BIPQ-P - BIPQ-Physician point of view; IPQ-RDE - IPQ Revised for Dental Use in Older/Elder Adults) ISP25 - Physical Self-Inventory Kessler Psychological Distress Scale (versions: K-10; K-5; K-6) KSQ - Kellner Symptom Questionnaire MDADI - MD Anderson Dysphagia Inventory (versions: MiniDADI) MDASI - MD Anderson Symptom Inventory MFI - Multidimensional Fatigue Inventory (versions: MFI-20; MFI-SF) NDII - Neck Dissection Impairment Index (versions: Modified NDII) PHQ - Patient Health Questionnaire (versions: PHQ-2; PHQ-4; PHQ-8; PHQ-9; PHQ-9 short; aPHQ-9; PHQ-A; PHQ-22; PHQ-8; PHQ-15) PL - Problem List (versions: modified PL for AYA) POMS - Profile of Mood States (versions: POMS-11; POMS-14; POMS-37; POMS-65; Brief POMS; POMS-Adolescent; POMS-sf; revised POMS; POMS-F - POMS-fatigue; POMS-Bi - POMS-Bipolar) Positive and Negative Affect Schedule PROMIS - Patient-Reported Outcomes Measurement Information System PSQI - Pittsburgh Sleep Quality Index PTGI - Post-Traumatic Growth Inventory QLI - Quality of Life Index [alias: Ferrans and Powers Quality of Life Index] (versions: QLI-III; QLI-D - QLI-Dialysis; QLI-CV - QLI-Cancer Version; QLI-Cardiac Version; QLI-WV - QLI Wound version) QOL-CS Thyroid - QOL–Cancer Survivor Thyroid Instrument QOL-RTI - Quality of Life Radiation Therapy Index (versions: QOL-RTI-H&N - Head and Neck) QOL-TV - Quality of Life Thyroid Version RAS - Relationship Assessment Scale Ryff’s Well Being Scale SAS - Self-rating Anxiety Scale SDS - Zung Self-rating Depression Scale (also: ZSDS ; versions: mZSDS) Self-Assessed Wisdom Scale SF-12 - 12-item Short Form Health Survey [alias: RAND-12] (versions: SF-12v2; VR-12 - Veterans SF-12; SF-12 MCS; SF-12 PCS) SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: MOS SF-36]] (versions: VSF-36 LoA - Visual Version of the SF-36 Limitations of Physical Activities domain; VR-36 - Veterans SF-36) database.cosmin.nl SF-6D - Short-Form 6D (derived from SF-36 or F-12) SIQ - Single Item Question SRGS - Stress-Related Growth Scale (versions: SRGS-R) STAI - State-Trait Anxiety Inventory (versions: STAI-X - STAI Form X; STAI-Y - STAI Form Y; STAI sf; STAI-4; STAI-6) THYCA-QoL - Thyroid Cancer-specific Quality of Life questionnaire ThyCAT - Thyroid cancer Quality of Life Computerized Adaptive Test ThyPRO - Thyroid-Related Patient-Reported Outcome TIWI - Three-Item Worry Index T-QOL - Thyroid QOL UWQOL - University of Washington Quality-of-life Instrument/Questionnaire (alias: UW QOL) (versions: UWQOL-V4; UWQOL-r - revised form) VHI - Voice Handicap Index (versions: VHI-9i; VHI-10; pVHI - paedatric VHI; SVHI - Singing VHI; SVHI-10) WHOQOL-BREF - World Health Organization Quality of Life questionnaire–Abbreviated Questionnaire (versions: WHOQOL-HIV-BREF; WHOQOL-BREF dialysis) XeQoLS - Xerostomia quality of life scale
