COSMIN database

Assessment of vision-related quality of life measures in ophthalmic conditions

Lundstrom, M. and Wendel, E.
In this researching this report, a literature search of Entrez PubMed revealed 178 suitable articles, published between January 2000 and April 2006, concerning vision-related quality of life and progressive sight loss. Of these, 147 concerned previously developed instruments and mainly focused on two areas: descriptions of health-related quality of life in certain diseases or treatments (n = 99) and descriptions of psychometric properties of an instrument (n = 48). A total of 17 new instruments were described in 31 articles. The large number of articles reflects the growing awareness of the need for patients' self-assessment of visual function; it may also reflect the difficulty of developing psychometrically robust instruments.
Expert Rev Pharmacoecon Outcomes Res
1744-8379 (Electronic)
Publication year:
General health perceptions / HRQoL:
Health-related quality of life
Adults (18-65)
Children (0-18)
Seniors (65+)
Diseases of and symptoms related to the eye and adnexa
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
2 - Interviews
6 - Clinical rating scales
ADVS - Activities of Daily Vision Scale
AMD-SEQ - Age-related Macular Degeneration Self-efficacy Questionnaire
Aravind VF - Aravind Visual Function
Canadian Refractive Surgery Research Group Questionnaire
Catquest (versions: Catquest-9SF)
CES-D - Centre for Epidemiologic Studies-Depression Scale (versions: CES-D-R; CES-D-8; CES-D-10; CES-D-11; CES-D-15; CES-D-20; CES-D-Children; CES-D-SF; CES-D m)   
Children's Visual Function Questionnaire
Comorbidity Bothersome Score
COMTOL - Comparison of Ophthalmic Medication for Tolerability
DLTV - Daily Living Tasks Dependent Upon Vision
DSSI - Duke Social Support Index
EORTC QLQ-C30 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Core-30 item (versions: EORTC QLQ-C24)   
EORTC QLQ-OPT37 - European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire-OPT37
EQ-5D-5L - euroQoL 5-dimension 5-level
GDI - Glaucoma Disability Index
GQL-15 (Also GQL-36 or GLAU-QOL36) - Glaucoma Quality of Life-15 (Glaucoma Quality of Life-36)
HADS - Hospital Anxiety and Depression Scale   
Hong Kong Cataract Questionnaire
HVAT - Houston Vision Assessment Test
IND-VFQ (Also IND-VFQ33) - Indian visual function questionnaire (Also: Indian visual function questionnaire 33)
IVI - Impact of Vision Impairment
Life Optimism Test-Revised
Life Space Questionnaire
LLQ - Low-Luminance Questionnaire
LVQOL - Low Vision Quality Of Life questionnaire
MacDQoL - Impact of Macular Disease on Quality of Life
MQLM - Institute for Eye Research Multidimensional Quality of Life for Myopia
MQLQ - Myopia-specific Quality of Life Questionnaire
NEI RQL - National Eye Institute Refractive Error Correction quality of life Questionnaire (versions: NEI RQL-42 items)
NEI VFQ-25 - 25-item National Eye Institute Visual Function Questionnaire
NEI VFQ - National Eye Institute Visual Function Questionaire (versions: NEI VFQ-9 items)
POMS - Profile of Mood States (versions: POMS-11; POMS-14; POMS-37; POMS-65; Brief POMS; POMS-Adolescent; POMS-sf; revised POMS)
QIRC - Quality of Life Impact of Refractive Correction Questionnaire
RQoLQ - Rhinoconjunctivitis Quality of Life Questionnaire
RSVP - Refractive Status and Vision Profile
Self-perceived Quality of Vision Questionnaire for Pseudophakic Subjects
SF-12 - 12-item Short Form Health Survey [alias: RAND-12]
SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: Medical Outcomes Study (MOS) SF-36]]    |  | also see:
SIP - Sickness Impact Profile   
SIPV - Vision-Specific Sickness Impact Profile
SRA-VFA - Self-report assessment of functional visual performance
SVQ - Subjective Vision Questionnaire
SWED-QOL - Swedish Health-Related QOL Survey
VAQ - Visual Activities Questionnaire
VCM1 - Core Questionnaire of Vision-Related Quality Of Life Measure
VF-14 - Visual Function Index-14 (versions: VF-7)
VSQ - Visual symptom and quality of life questionnaire
WBQ - Well-Being Questionnaire [alias: W-BQ] (versions: WBQ-12; WBQ-22; WBQ-28)