Evaluating health-related quality-of-life studies in paediatric populations - Some conceptual, methodological and developmental considerations and recent applications

Authors:
De Civita, M., Regier, D., Alamgir, A. H., Anis, A. H., FitzGerald, M. J., and Marra, C. A.
Abstract:
Although numerous paediatric-based health-related quality-of-life (HR-QOL) instruments are currently in use, there still remain conceptual, methodological and developmental issues to address. This paper provides an up-to-date critical review of the HR-QOL literature in paediatric medicine.
DOI:
Doi 10.2165/00019053-200523070-00003
URL:
<Go to ISI>://WOS:000230828700003
Journal:
Pharmacoeconomics
issn:
1170-7690
Publication year:
2005
pages:
659-685
General health perceptions / HRQoL:
Health-related quality of life
Age:
Children (0-18)
Disease:
Certain infections and parasitic diseases and related symptoms
Diseases of and symptoms related to the ear and mastoid process
Diseases of and symptoms related to the respiratory system
Neoplasms and related symptoms
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
Instrument:
CBCL - Child Behavior Checklist (versions: CBCL-2; CBCL-3; CBCL-ADHD; CBCL-teacher rated; CBCL-Y - CBCL Youth; CBCL/6-18)    | 
CFQ - Cystic Fibrosis Questionnaire (versions: CFQ-R; 14+ for teens; Adolescents; Child; Parent/proxy)
CHAQ - Childhood Health Assessment Questionnaire (versions: CHAQ-informant only; CHAQ-38; CHAQ-38informant only; CHAQ-parent; CHAQ-e-version)
CHQ-CF - Child Health Questionnaire-Child Form (versions: CHQ-CF45; CHQ-CF87; CHQ-CF-BREF)
CHQ - Child Health Questionnaire (versions: CHQ-SF; CHQ50)
CHQ-PF - Child Health Questionnaire – Parent Form (versions: CHQ-PF27; CHQ-PF28; CHQ-PF50)
KINDL (versions: KINDL-R; KINDL-R-Diabetes; Kiddy Kindl - 4-6 years; Kiddo Kindl - 14-17 years; Kid Kindl - 7-13 years; Kid/Kiddo KINDL - 7-17 years; Kiddy-KINDL CQ - Childrens' Questionnaire; Kiddy-KINDL PQ - Parents' Questionnaire; KINDL CATSCREEN)
OSA-18 - Obstructive Sleep Apnea 18-item quality of life survey
OSD-6 - Obstructive Sleep Disorders-6 Survey
PACQLQ - Pediatric Asthma Caregiver’s Quality of Life Questionnaire (versions: e-version)
PADQLQ - Pediatric Allergic Disease Quality of Life Questionnaire
PAQLQ - Pediatric Asthma Quality of Life Questionnaire (versions: PAQLQ-S - PAQLQ-Standardized; Mini PAQLQ; Mini-PAQLQ-e-version; e-versions; Pictorial PAQLQ)
PCQL - Pediatric Cancer Quality of Life Inventory (versions: PCQL-32; PCQL-Modular Approach)
PEDQOL® - Quality Of Life in Children and adolescents with cancer (versions: PEDQOL-PF)
PTHSI - Paediatric Tracheotomy Health Status Instrument
TAHSI - Tonsil and Adenoid Health Status Instrument

Tools