Assessing the needs of informal caregivers to cancer survivors: a review of the instruments

Authors:

Prue, G., Santin, O., and Porter, S.

Abstract:

ObjectiveCancer may impact negatively on an informal caregiver's health long after treatment has ended. This review identifies the self-report measures currently in use to measure caregivers need for support and determines their scientific soundness and clinical utility.

DOI:

10.1002/pon.3609

URL:

<Go to ISI>://WOS:000348760800001

Journal:

Psycho-Oncology

issn:

1057-9249

Publication year:

2015

pages:

121-129

Symptom status:

Emotional state

Functional status:

Role functioning
Social functioning

Age:

Adults (18-65)
Seniors (65+)

Disease:

Neoplasms and related symptoms

PRO / non-PRO:

Non-patient Reported Outcome

Type of measurement instrument:

1 - Questionnaires

Instrument:

CaSPUN - Cancer Survivors’ Partners Unmet Needs
CaTCoN - Cancer Caregiving Tasks, Consequences and Needs Questionnaire
CNAT - Comprehensive Needs Assessment Tool in Cancer (versions: CNAT-C - CNAT-Caregivers)
HCNS - Healthcare Needs Scale/Survey
NAFC-C - Needs Assessment of Family Caregivers–Cancer
SCNS - Supportive Care Needs Survey (versions: SCNS-SF; SCNS-SF34; SCNS-LF59; SCNS-P&C - SCNS-Partner and Caregivers; SCNS-ST9 - SCNS-Screening Tool-9; SCNS34-BS - SCNS 34 +brain subscale)
SPUNS - Support Person Unmet Needs Survey