Assessment of psychosocial outcomes in adolescents and young adults with cancer: a systematic review of available instruments
Authors:
Wakefield, C. E., Patterson, P., McDonald, F. E. J., Wilson, H. L., Davis, E., and Sansom-Daly, U. M.
Abstract:
Purpose: Given the burgeoning body of research relating to the psychosocial needs of adolescents and young adults (AYAs) with cancer, this review aimed to evaluate the psychometric properties and appropriateness of the instruments available for use in this unique population. Specifically, we reviewed published instruments developed to assess psychological distress (depression, anxiety, stress, and fear of recurrence), psychological growth (resilience, posttraumatic growth, and benefit finding), unmet needs, coping, quality of life, identity, and mindfulness-based practices and skills in AYAs with cancer. Given the dearth of validated instruments targeting AYAs with cancer, this review also provides a summary of promising measures yet to be formally validated in this population.
Diseases of and symptoms related to the blood and blood-forming organs and certain disorders involving the immune mechanism Diseases of and symptoms related to the nervous system Neoplasms and related symptoms
