COSMIN database

The suitability of patient-based measures in the field of Parkinson's disease: a systematic review

Den Oudsten, B. L., Van Heck, G. L., and De Vries, J.
The aim of this study is to appraise the suitability of current quality of life (QOL) questionnaires for use in the field of Parkinson's disease (PD). Computerized bibliographic databases were screened for publications from 1960 to December 2006. Predefined selection criteria were used to identify QOL questionnaires in PD studies. Two investigators independently assessed and, subsequently, agreed on a set of multidimensional generic and PD-specific QOL questionnaires. Data were extracted concerning the internal structure, reliability, validity, and responsiveness of the included questionnaires. Sixteen-questionnaires were found, of which 14 questionnaires were included (six generic measures and eight PD-specific). In general, the psychometrics of all the questionnaires were adequately described. Sensitivity to change, however, has been reported for only a limited number of instruments. Almost all included questionnaires used QOL as a keyword, but only two questionnaires fitted the broad QOL definition used in this review. Considering the few "real " QOL questionnaires, we conclude that there is a strong need for such instruments.
Mov Disord
0885-3185 (Print)
Publication year:
Overall quality of life:
Overall quality of life
Adults (18-65)
Seniors (65+)
Diseases of and symptoms related to the nervous system
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
2 - Interviews
6 - Clinical rating scales
15D - 15-Dimensional Health-Related Quality Of Life Measure   
EQ-5D - EuroQoL-5 Dimensions   
NHP - Nottingham Health Profile   
PDQ-39 - Parkinson’s Disease Questionnaire-39-item   
PDQ-8 - Parkinson’s Disease Questionnaire-8-item
PDQL - Parkinson’s Disease Quality of Life questionnaire   
PDQ-quality of sexual life dimension - Parkinson’s disease questionnaire quality of sexual life dimension
PDQUALIF - Parkinson’s Disease Quality of Life Scale
PIMS - Parkinson’s Impact Scale
QLS DBS - Questions on Life Satisfaction Deep Brain Stimulation
QLS movement disorders - Questions on Life Satisfaction movement disorders
SCOPA - SCales for Outcomes in PArkinson’s with scales for: PsychoSocial questionnaire SCOPA-PS ; Autonomic dysfunction SCOPA-AUT; Sleep SCOPA-SLEEP; Cognition SCOPA-COG;
SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: Medical Outcomes Study (MOS) SF-36]]    |  | also see:
SIP - Sickness Impact Profile   
WHOQOL-BREF - World Health Organization Quality of Life questionnaire–Abbreviated Questionnaire [alias: WHO-QOL BREF]