COSMIN database

Quality of life assessment in children: a review of conceptual and methodological issues in multidimensional health status measures

Authors:
Pal, D. K.
Abstract:
STUDY OBJECTIVE: To clarify concepts and methodological problems in existing multidimensional health status measures for children.

DESIGN: Thematic review of instruments found by computerised and manual searches, 1979-95.

SUBJECTS: Nine health status instruments.

MAIN RESULTS: Many instruments did not satisfy criteria of being child centered or family focussed; few had sufficient psychometric properties for research or clinical use; underlying conceptual assumptions were rarely explicit.

CONCLUSIONS: Quality of life measures should be viewed cautiously. Interdisciplinary discussion is required, as well as discussion with children and parents, to establish constructs that are truly useful.
URL:
https://www.ncbi.nlm.nih.gov/pubmed/8882220
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1060307/
Journal:
J Epidemiol Community Health
issn:
0143-005X (Print)
Publication year:
1996
pages:
391-6
Overall quality of life:
Overall quality of life
Age:
Children (0-18)
Disease:
Certain conditions originating in the perinatal period and related symptoms
Congenital malformations, deformations and chromosomal abnormalities and related symptoms
Diseases of and symptoms related to the blood and blood-forming organs and certain disorders involving the immune mechanism
Diseases of and symptoms related to the circulatory system
Diseases of and symptoms related to the digestive system
Diseases of and symptoms related to the ear and mastoid process
Diseases of and symptoms related to the eye and adnexa
Diseases of and symptoms related to the genitourinary system
Diseases of and symptoms related to the musculoskeletal system and connective tissue
Diseases of and symptoms related to the nervous system
Diseases of and symptoms related to the respiratory system
Diseases of and symptoms related to the skin and subcutaneous tissue
Endocrine, nutritional and metabolic diseases and related symptoms
External causes of morbidity and mortality
Injury, poisoning and certain other consequences of external causes
Mental and behavioural disorders and related symptoms
Neoplasms and related symptoms
Pregnancy, childbirth and puerperium and related symptom
Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
2 - Interviews
6 - Clinical rating scales
Instrument:
Children Quality of Life
CHIP - Child Health and Illness Profile
FSQ-G - Functional Status Questionnaire-General
FSQ-S - Functional Status Questionnaire-specific
Functional status II(R)