COSMIN database

How can occupational therapists measure outcomes in palliative care?

Pearson, E. J., Todd, J. G., and Futcher, J. M.
The objective of this paper is to identify an outcome measure for occupational therapy interventions with palliative clients, in particular Home Assessments. Several possibilities beyond traditional functional measures are considered, and the notion of quality of life (QoL) as a potential measure and routine part of assessment is discussed.A systematic literature search resulted in 45 QoL tools that might be suitable for palliative care. The validation or development papers for these tools were closely examined. Twenty-four instruments met the inclusion criteria for further consideration for use by occupational therapists.The research found that it may be feasible for occupational therapists to use a QoL tool as a routine part of assessing each palliative patient, with the objective of focusing interventions to priority areas identified by the patient. Further work in this area will identify a range of established and validated methods of assessing QoL, suitable for different stages within the palliative phase of illness for purposes including assessment, support and targeted interventions
Publication year:
Overall quality of life:
Overall quality of life
Adults (18-65)
Seniors (65+)
Certain conditions originating in the perinatal period and related symptoms
Certain infections and parasitic diseases and related symptoms
Congenital malformations, deformations and chromosomal abnormalities and related symptoms
Diseases of and symptoms related to the blood and blood-forming organs and certain disorders involving the immune mechanism
Diseases of and symptoms related to the circulatory system
Diseases of and symptoms related to the digestive system
Diseases of and symptoms related to the ear and mastoid process
Diseases of and symptoms related to the eye and adnexa
Diseases of and symptoms related to the genitourinary system
Diseases of and symptoms related to the musculoskeletal system and connective tissue
Diseases of and symptoms related to the nervous system
Diseases of and symptoms related to the respiratory system
Diseases of and symptoms related to the skin and subcutaneous tissue
Endocrine, nutritional and metabolic diseases and related symptoms
External causes of morbidity and mortality
Injury, poisoning and certain other consequences of external causes
Mental and behavioural disorders and related symptoms
Neoplasms and related symptoms
Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
2 - Interviews
6 - Clinical rating scales
AQEL - Assessment of Quality of Life at the End of Life
BHI - Brief Hospice Inventory
CGI - Client Generated Index
CoH-QoL - City of Hope Quality of Life Tool
EORTC QLQ-C30 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Core-30 item (versions: EORTC QLQ-C24)   
FACT-G - Functional Assessment of Cancer Therapy-General
FACT-Pal - Functional Assessment of Cancer Therapy-Palliative
FLIC - Functional Living Interview questionnaire for Cancer
LEQ - Life Evaluation Questionnaire
MQLS - McMaster Quality of Life Scale
MQOL - McGill Quality of Life Questionnaire [alias: McGill QoL] (also: MQOL-CSF - MQOL-Cardiff Short form)
MVQOLI - Missoula-VITAS Quality of Life Index
NEST - Needs at the End-of Life Screening Tool
PACA - Palliative Care Assessment
PEPS - Patient Evaluated Problem Score
POS - Palliative care Outcome Scale   
QOL-CA - Quality of Life Scale-Cancer
QUAL-E - Quality of Life at the End of Life
SEIQoL - Schedule for the Evaluation of Individual Quality of Life (versions: SEIQoL-DW - SEIQoL Direct Weighting)
SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: Medical Outcomes Study (MOS) SF-36]]    |  | also see:
TIQ - The Therapy Impact Questionnaire
WHOQOL-BREF - World Health Organization Quality of Life questionnaire–Abbreviated Questionnaire (versions: WHOQOL-HIV-BREF)