COSMIN database

Measuring symptoms in localized prostate cancer: a systematic review of assessment instruments

Authors:
Rnic, K., Linden, W., Tudor, I., Pullmer, R., and Vodermaier, A.
Abstract:
It is critical for prostate cancer researchers and clinicians to have access to comprehensive, sensitive and simple-to-use symptom measures that allow them to understand and quantify the subjective patient experience. The purpose of the current review is to provide a comprehensive review, detailed tool descriptions and objectively defined quality criteria to facilitate tool choices for patients with localized prostate cancer. Using a systematic web-based literature search, we found n=29 prostate symptom measures described in n=35 validation studies. To be recommended, tools needed to meet four criteria: broad domain coverage, ability to differentiate objective and subjective experience, good internal consistency and validation in at least two populations and/or having achieved two types of validations. Of the 29 tools reviewed, n=7 meet our criteria for recommendation, and three in particular (the EPIC-26 (Expanded Prostate Cancer Index Composite)-26, PC-QOL (Prostate Cancer-Quality of Life) and the UCLA-PCI (UCLA Prostate Cancer Index)) showed the strongest psychometrics. There is a reasonable number of measures to choose from that meet criteria for good psychometrics.
DOI:
10.1038/pcan.2013.1
URL:
https://www.ncbi.nlm.nih.gov/pubmed/23381695
Journal:
Prostate Cancer Prostatic Dis
issn:
1476-5608 (Electronic)
Publication year:
2013
pages:
111-22
Symptom status:
Physical state
Age:
Adults (18-65)
Children (0-18)
Seniors (65+)
Disease:
Neoplasms and related symptoms
PRO / non-PRO:
Patient Reported Outcome
Type of measurement instrument:
6 - Clinical rating scales