Measuring symptoms in localized prostate cancer: a systematic review of assessment instruments
- Abstract:
- It is critical for prostate cancer researchers and clinicians to have access to comprehensive, sensitive and simple-to-use symptom measures that allow them to understand and quantify the subjective patient experience. The purpose of the current review is to provide a comprehensive review, detailed tool descriptions and objectively defined quality criteria to facilitate tool choices for patients with localized prostate cancer. Using a systematic web-based literature search, we found n=29 prostate symptom measures described in n=35 validation studies. To be recommended, tools needed to meet four criteria: broad domain coverage, ability to differentiate objective and subjective experience, good internal consistency and validation in at least two populations and/or having achieved two types of validations. Of the 29 tools reviewed, n=7 meet our criteria for recommendation, and three in particular (the EPIC-26 (Expanded Prostate Cancer Index Composite)-26, PC-QOL (Prostate Cancer-Quality of Life) and the UCLA-PCI (UCLA Prostate Cancer Index)) showed the strongest psychometrics. There is a reasonable number of measures to choose from that meet criteria for good psychometrics.
- DOI:
- 10.1038/pcan.2013.1
- URL:
- https://www.ncbi.nlm.nih.gov/pubmed/23381695
- Journal:
- Prostate Cancer Prostatic Dis
- issn:
- 1476-5608 (Electronic)
- Publication year:
- 2013
- pages:
- 111-22
- Symptom status:
- Emotional state
Physical state - Functional status:
- Physical functioning
Role functioning
Social functioning - General health perceptions / HRQoL:
- Health-related quality of life
- Overall quality of life:
- Overall quality of life
- Age:
- Adults (18-65)
Seniors (65+) - Disease:
- Neoplasms and related symptoms
- PRO / non-PRO:
- Patient Reported Outcome
- Type of measurement instrument:
- 1 - Questionnaires
- Instrument:
- EORTC QLQ-PR25 -EORTC quality of life in patients with prostate cancer 25 item
EPIC-26-abbreviated version, - Expanded Prostate Cancer Index Composite - abbreviated version
EPIC-CP - Expanded Prostate Cancer Index Composite for Clinical Practice
EPIC - Expanded Prostate Cancer Index Composite
ESCAP-CDV - Estudio sobre la Calidad de Vida en el Cáncer de Próstata- Calidad de Vida
European Quality of Life Questionnaire
FACT-Advanced Prostate Symptom Index-8 - Functional Assessment of Cancer Therapy Advanced Prostate Symptom Index-8 items
FACT-P - Functional Assessment of Cancer Therapy Prostate
FACT-P Symptom Index-17 - Functional Assessment of Cancer Therapy Prostate Symptom Index-17 items
IPSS - International Prostate Symptom Score [see: ZUYD (NL)]
Late effects of normal tissue
Male Urogenital Distress Inventory
PC-QoL - Prostate Cancer Quality of Life
PCSI - Prostate Cancer-Specific Instrument
PORPUS - Patient-Oriented Prostate Utility Scale
PROSQOLI - Prostate Cancer- Specific QOL Instrument
Prostate Cancer Symptom Scale [alias: QUFW94]
Prostate Cancer Treatment Outcome Questionnaire
Prostatectomy Therapy Survey Instruments
Prostate Symptom Self-Report
PSM - German Prostate Specific Module
QII
Radiation Adverse Effect QOL Tool
Radiumhemmets Scale of Disease-Specific Symptom Assessment-Prostate Cancer;
STAR
Symptom Index
Symptom Indexes
Symptom Scale
UCLA-PCI - University of California Los Angeles-Prostate Cancer Index