COSMIN database

Clinimetric properties of participation measures for 5- to 13-year-old children with cerebral palsy: a systematic review

Authors:
Sakzewski, L., Boyd, R., and Ziviani, J.
Abstract:
This study systematically reviewed the validity, reliability, sensitivity to change, and clinical utility of measurements of participation for children with cerebral palsy. Sixteen measures were identified and seven met the inclusion criteria of having 30% content measuring participation, for use with children aged 5 to 13 years with physical disability, and were condition specific. The Children's Assessment of Participation and Enjoyment (CAPE) assessed participation in leisure and recreation, while the School Function Assessment (SFA) and School Outcome Measure addressed participation in the school environment. The Assessment of Life Habits for Children (LIFE-H) measured participation in home, school, and community life, and the Children Helping Out: Responsibilities and Expectations assessed children's participation in household duties. The Canadian Occupational Performance Measure (COPM) and Goal Attainment Scaling (GAS) were individualized tools used to evaluate goal achievement. Results showed most instruments had adequate reliability and validity. The COPM and GAS were the only measures that reported adequate responsiveness to detect clinically significant change. Limited data are currently available to determine the responsiveness of the CAPE, LIFE-H, and SFA. A combination of assessments is required to capture participation of children in home, school, and community environments.
DOI:
10.1111/j.1469-8749.2007.00232.x
URL:
https://www.ncbi.nlm.nih.gov/pubmed/17355482
Journal:
Dev Med Child Neurol
issn:
0012-1622 (Print)
Publication year:
2007
pages:
232-40
Functional status:
Role functioning
Social functioning
Age:
Children (0-18)
Disease:
Certain conditions originating in the perinatal period and related symptoms
Diseases of and symptoms related to the nervous system
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
2 - Interviews
4 - Performance-based tests
6 - Clinical rating scales
Instrument:
CAPE/PAC - Children's Assessment of Participation and Enjoyment / Preferences for Activities of Children   [see: ZUYD (NL)]
CHORES - Children Helping Out: Responsibilities, Expectations, and Supports
COPM - Canadian Occupational Performance Measure   [see: ZUYD (NL)]
GAS - Goal Attainment Scale   [see: ZUYD (NL)]
LIFE-H - Assessment of Life Habits   [see: ZUYD (NL)]
SFA - School Function Assessment
SOM - School Outcome Measure