COSMIN database

Child/parent-assessed population health outcome measures: a structured review

Authors:
Schmidt, L. J., Garratt, A. M., and Fitzpatrick, R.
Abstract:
AIMS: To identify generic measures of health-related quality of life (HRQL) for children and adolescents developed for use within general populations. Instruments are evaluated on the basis of evidence relating to their reliability and validity.

METHODS: Systematic literature searches were used to identify instruments, which were then assessed against predefined criteria. Information relating to instrument content, population, reliability and validity was extracted from published papers.

RESULTS: Sixteen instruments were identified that had been evaluated among a general population of children or adolescents. Four instruments had reported data on both internal consistency and test-retest reliability. All except two instruments had undergone some degree of construct validation.

CONCLUSIONS: The evidence suggests that the Child Health Questionnaire (CHQ) has been the most extensively evaluated for younger populations but is available as a parent-completed measure only. The new version of the Child Health and Illness Profile (CHIP-CE) is particularly promising and has parallel child- and parent-completed versions for young ages. The weight of evidence suggests that versions of these two instruments are suitable for older children. The Warwick Child Health and Morbidity Profile could be used where information on morbidity and health service contacts is required. Once basic psychometric criteria are fulfilled, instruments should be chosen by assessing their content and design in the light of the prospective application.
URL:
https://www.ncbi.nlm.nih.gov/pubmed/12064288
Journal:
Child Care Health Dev
issn:
0305-1862 (Print)
Publication year:
2002
pages:
227-37
General health perceptions / HRQoL:
Health-related quality of life
Age:
Adults (18-65)
Children (0-18)
Seniors (65+)
Disease:
Certain conditions originating in the perinatal period and related symptoms
Congenital malformations, deformations and chromosomal abnormalities and related symptoms
Diseases of and symptoms related to the blood and blood-forming organs and certain disorders involving the immune mechanism
Diseases of and symptoms related to the circulatory system
Diseases of and symptoms related to the digestive system
Diseases of and symptoms related to the ear and mastoid process
Diseases of and symptoms related to the eye and adnexa
Diseases of and symptoms related to the genitourinary system
Diseases of and symptoms related to the musculoskeletal system and connective tissue
Diseases of and symptoms related to the nervous system
Diseases of and symptoms related to the respiratory system
Diseases of and symptoms related to the skin and subcutaneous tissue
Endocrine, nutritional and metabolic diseases and related symptoms
External causes of morbidity and mortality
Injury, poisoning and certain other consequences of external causes
Mental and behavioural disorders and related symptoms
Neoplasms and related symptoms
Pregnancy, childbirth and puerperium and related symptom
Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified
PRO / non-PRO:
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
6 - Clinical rating scales
Instrument:
CHIP - Child Health and Illness Profile
CHQ - Child Health Questionnaire
COMQoL-Comprehensive Quality of Life Scale
COOP charts - Dartmouth COOP Functional Health Assessment Charts
Exqol - Exeter Quality of Life Measure
Functional status II(R)
GCQ - Generic Children’s Quality of Life Measure
Instrument for monitoring adolescent health issues
Juvenile wellness and health survey
Pediatric HealthQuiz
Pictorial Scale of Perceived Competence and Social Acceptance for Young Children
Quality of Life Profile-Adolescent Version
Warwick Child Health and Morbidity Profile