Psychometric properties of outcome measures for children and adolescents with brachial plexus birth palsy: a systematic review
- Abstract:
- AIM: The aim of this review was to evaluate the psychometric properties of outcome measures used to quantify upper limb function in children and adolescents with brachial plexus birth palsy (BPBP).
METHOD: Eleven electronic databases were searched to identify studies on the effects of conservative management to improve upper limb function in young people with BPBP. Outcome measures used in these studies were extracted and used in a subsequent search to identify studies that evaluated the psychometric properties of these measures. The methodological quality of these studies was rated using a standardized critical appraisal tool.
RESULTS: Thirty-three outcome measures and 12 psychometric studies were identified. Nine outcome measures had some psychometric evidence, which was variable in quality. The outcome measures which seem to have the most robust psychometric properties include the Active Movement Scale, Assisting Hand Assessment, Pediatric Evaluation of Disability Index, and the Pediatric Outcomes Data Collection Instrument.
INTERPRETATION: Further research is required to determine the psychometric properties of outcome measures used for children and adolescents with BPBP. Caution is required when interpreting the results of commonly used outcome measures in this population owing to their relatively unknown psychometric properties. - DOI:
- 10.1111/dmcn.12194
- URL:
- https://www.ncbi.nlm.nih.gov/pubmed/23808952
- Journal:
- Dev Med Child Neurol
- issn:
- 1469-8749 (Electronic)
- Publication year:
- 2013
- pages:
- 1075-88
- Biological and physiological variables:
- Biological and physiological variables
- Functional status:
- Physical functioning
Role functioning - Age:
- Children (0-18)
- Disease:
- Certain conditions originating in the perinatal period and related symptoms
Diseases of and symptoms related to the nervous system - PRO / non-PRO:
- Non-patient Reported Outcome
- Type of measurement instrument:
- 1 - Questionnaires
2 - Interviews
4 - Performance-based tests
6 - Clinical rating scales
7 - Observations
8 - Imaging tests
9 - Laboratory tests - Instrument:
- 2PD - Two Point Discrimination
Activities to evaluate arm and hand function
AHA - Assisting Hand Assessment
AMS - Active Movement Scale
Bimanual activity
Brachial Plexus Outcome Measure
British Medical Council's Muscle Movement Scale
Children's Hand-use Experience Questionnaire
Coding of sequelae
DEXA - Dual energy X-ray absorptiometry
Functional Questionnaire
Functional skills
Gilbert and Raimondi Scale (elbow)
Global clinical rating scale
Grip strength (versions: Test of toe grip strength)
Impairment rating scale
Level to perform normal activities of daily living
Mallet Scale (shoulder)
MUUL - Melbourne Assessment of Unilateral Upper Limb Function (versions: MUUL-2)
Narakas Motor Scale
NHPT - Nine-Hole Peg Test
PEDI - Pediatric Evaluation of Disability Inventory (versions: PEDI-CAS - PEDI-Caregiver Assistance Scale; PEDI-CAT - PEDI-Computer Adaptive Test; PEDI-CAT ASD-autism spectrum disorder)
Pick-up test
PODCI - Pediatric Outcomes Data Collection Instrument (versions: PODCI-v2; PODCI-UE - PODCI-Upper Extremity; PODCI-parent proxy form; Scoliosis Research Society PODCI; Scoliosis Research Society PODCI-e-version)
QST - Quantitative Sensory Testing
Quantitative electromyography
Raimondi Scale (hand)
Scoliosis (via observation)
Stereognosis
Toronto Test Score
Upper limb movement-active
Upper limb movement - passive
WFH - World Federation of Hemophilia orthopaedic joint score [alias: Gilbert Score (or: Scale)]