COSMIN database

Measures of Participation Outcomes and Environmental Considerations for Children With Acquired Brain Injury: A Systematic Review

Authors:
Ziviani, J., Desha, L., Feeney, R., and Boyd, R.
Abstract:
This systematic review examined the psychometric properties and application of assessments used to evaluate participation outcomes and environmental factors for children with acquired brain injury (ABI). An electronic search of eight databases for articles published up to June 2009 revealed reference to 98 outcome measures. According to inclusion criteria based on the International Classification of Functioning, Disability and Health (

ICF: Child and Youth version), five were identified as measures of participation (Children's Assessment of Participation and Enjoyment [CAPE], Child and Adolescent Scale of Participation [CASP], Assessment of Life Habits for Children [LIFE-H], Participation Index of the Mayo-Portland Adaptability Index [M2PI], and the Participation Subscale of the School Function Assessment [SFA-PS]). Six were identified as measures of environment (Child and Adolescent Scale of Environment [CASE], Craig Hospital Inventory of Environmental Factors [CHIEF], European Child Environment Questionnaire [ECEQ], Family Inventory of Life Events and Changes [FILE], HOME Inventory, and the Multidimensional Scale of Perceived Social Support Scale [MSPSS]). The measures were critiqued in relation to content, validity, reliability, clinical utility, responsiveness, and overall strengths/weaknesses. These measures need to be evaluated more extensively with children who have ABI to further determine their psychometric properties and clinical usefulness with this population.
DOI:
10.1375/brim.11.2.93
URL:
<Go to ISI>://WOS:000208404700002
Journal:
Brain Impairment
issn:
1443-9646
Publication year:
2010
pages:
93-112
Functional status:
Physical functioning
Role functioning
Social functioning
General health perceptions / HRQoL:
Health-related quality of life
Overall quality of life:
Overall quality of life
Age:
Children (0-18)
Disease:
Injury, poisoning and certain other consequences of external causes
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
2 - Interviews
6 - Clinical rating scales
7 - Observations
Instrument:
CAPE/PAC - Children's Assessment of Participation and Enjoyment / Preferences for Activities of Children   [see: ZUYD (NL)]
CASE - Child and Adolscent Scale of Environment
CASP - Child and Adolescent Scale of Participation
CHIEF - Craig Hospital Inventory of Environmental Factors   [see: ZUYD (NL)]
ECEQ - European Child Environment Questionnaire
FILE - Family Inventory of Life Events and changes
HOME - Home Observation for Measurement of the Environment
LIFE-H - Assessment of Life Habits   [see: ZUYD (NL)]
M2PI - Participation Index of the Mayo-Portland Adaptability Index
MSPSS - Multidimensional Scale of Perceived Social Support
SFA - School Function Assessment