COSMIN database

Monitoring health related quality of life in adolescents with diabetes: a review of measures

Authors:
de Wit, M., Delemarre-van de Waal, H. A., Pouwer, F., Gemke, R. J., and Snoek, F. J.
Abstract:
Particularly in chronic conditions, monitoring health related quality of life (HRQoL) of adolescents in clinical practice is increasingly advocated. We set out to identify and review the clinical utility of available generic and diabetes specific HRQoL questionnaires suitable for use in adolescents with type 1 diabetes. Four generic and five diabetes specific questionnaires were identified and evaluated. The responsiveness of most instruments warrants further research and standardisation of HRQoL measurement should be sought to facilitate comparisons across centres and countries. The PedsQL and the KINDL-R appear, at this time, to be the most suitable instruments.
DOI:
10.1136/adc.2006.102236
URL:
https://www.ncbi.nlm.nih.gov/pubmed/17449526
Journal:
Arch Dis Child
issn:
1468-2044 (Electronic)
Publication year:
2007
pages:
434-9
General health perceptions / HRQoL:
Health-related quality of life
Age:
Children (0-18)
Disease:
Endocrine, nutritional and metabolic diseases and related symptoms
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
6 - Clinical rating scales
Instrument:
ADDQoL-Teen - Audit of Diabetes Dependent Quality of Life-Teen version
CHQ-CF87 - Child Health Questionnaire-Child Form 87
DISABKIDS
DISABKIDS-DM - DISABKIDS-Diabetes Module
DQOL-Y - Diabetes Quality of Life-Youth questionnaire
KINDL-R
KINDL-R-Diabetes - Revidierter KINDer Lebensqualitäts fragebogen Diabetes
PedsQL 4.0 Generic Core Scales - Pediatric Quality of Life Inventory Generic Core Scales
PedsQL-DM - Pediatric Quality of Life Inventory-Diabetes Module