Monitoring health related quality of life in adolescents with diabetes: a review of measures
- Abstract:
- Particularly in chronic conditions, monitoring health related quality of life (HRQoL) of adolescents in clinical practice is increasingly advocated. We set out to identify and review the clinical utility of available generic and diabetes specific HRQoL questionnaires suitable for use in adolescents with type 1 diabetes. Four generic and five diabetes specific questionnaires were identified and evaluated. The responsiveness of most instruments warrants further research and standardisation of HRQoL measurement should be sought to facilitate comparisons across centres and countries. The PedsQL and the KINDL-R appear, at this time, to be the most suitable instruments.
- DOI:
- 10.1136/adc.2006.102236
- URL:
- https://www.ncbi.nlm.nih.gov/pubmed/17449526
- Journal:
- Arch Dis Child
- issn:
- 1468-2044 (Electronic)
- Publication year:
- 2007
- pages:
- 434-9
- General health perceptions / HRQoL:
- Health-related quality of life
- Age:
- Children (0-18)
- Disease:
- Endocrine, nutritional and metabolic diseases and related symptoms
- PRO / non-PRO:
- Non-patient Reported Outcome
Patient Reported Outcome - Type of measurement instrument:
- 1 - Questionnaires
6 - Clinical rating scales - Instrument:
- ADDQoL-Teen - Audit of Diabetes Dependent Quality of Life-Teen version
CHQ-CF - Child Health Questionnaire-Child Form (versions: CHQ-CF45; CHQ-CF87; CHQ-CF-BREF)
DISABKIDS-DM - DISABKIDS-Diabetes Module
DISABKIDS (versions: DISABKIDS-37)
DQOL-Y - Diabetes Quality of Life-Youth questionnaire
KINDL-R
KINDL-R-Diabetes - Revidierter KINDer Lebensqualitäts fragebogen Diabetes
PedsQL 4.0 Generic Core Scales - Pediatric Quality of Life Inventory Generic Core Scales (versions: PedsQL 4.0 TODDLER; PedsQL 4.0 YOUNG CHILD; PedsQL 4.0 CHILD; PedsQL 4.0 TEENAGER; PedsQL 4.0 SF15)
PedsQL-DM - Pediatric Quality of Life Inventory-Diabetes Module