COSMIN database

A systematic review of the psychometric properties of self-reported scales assessing burn contractures reveals the need for a new tool to measure contracture outcomes

Authors:
Ehanire, T., Vissoci, J. R., Slaughter, K., Coelho, R., Bond, J., Rodrigues, C., Pietrobon, R., and Levinson, H.
Abstract:
Approximately 40% of burn patients develop scar contractures. It is unknown which scar contracture therapy best optimizes activities of daily living (ADL).The appropriateness of self-reported outcome tools in measuring anti-scar contracture therapies has not been assessed. We conducted a systematic review to determine the quality of existing self-reported scales in measuring ADL among burn patients by analyzing and comparing psychometric properties-factor analysis, validity, reliability, and responsiveness. EMBASE, LILACS, American Psychological Association PsycNET databases were searched for relevant articles. Forty-one articles discussing 10 burn and non-burn-specific scales met eligibility criteria of ADL assessment, and available psychometric analyses. A common strength in most scales was good overall reliability. Common weaknesses were insufficient data on factor analyses, content validity specific to ADL assessment, and responsiveness. The psychometric analyses studies on these scales had poor sample variability. There is insufficient data on the dimensionality and responsiveness of existing scales to support their use for measuring ADL in burn patients. Existing scales do not comprehensively measure ADLs as an isolated parameter. A psychometrically valid, comprehensive self-reported burn contracture scale that measures ADLs among a diverse group of burn patients needs to be developed to optimize burn contracture treatments and develop new therapies.
DOI:
10.1111/wrr.12058
URL:
https://www.ncbi.nlm.nih.gov/pubmed/23758108
Journal:
Wound Repair Regen
issn:
1524-475X (Electronic)
Publication year:
2013
pages:
520-9
Symptom status:
Physical state
Functional status:
Physical functioning
Overall quality of life:
Overall quality of life
Age:
Adults (18-65)
Children (0-18)
Seniors (65+)
Disease:
Diseases of and symptoms related to the musculoskeletal system and connective tissue
Diseases of and symptoms related to the skin and subcutaneous tissue
Injury, poisoning and certain other consequences of external causes
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
6 - Clinical rating scales
Instrument:
BOQ 0-5 - Burn Outcomes Questionnaire 0-5 years
BOQ 11-18 adolescent - Burn Outcomes Questionnaire 11-18 years adolescent form
BOQ 5-18 parent - Burn Outcomes Questionnaire 5-18 years parent form
BSHS-A - Burn Specific Health Scale-A
BSHS-B - Burn Specific Health Scale-brief
BSHS - Burn Specific Health Scale
BSHS-R - Burn Specific Health Scale-Revised
DLQI - Dermatology Life Quality Index   [see: proqolid]
EQ-5D - EuroQoL-5 Dimensions   [see: ZUYD (NL)]
QoLS - Quality of Life Scale
Quick DASH - Quick Disabilities of the Arm, Shoulder and Hand   [see: ZUYD (NL)]
SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: Medical Outcomes Study (MOS) SF-36]]   [see: proqolid, ZUYD (NL), also see: https://database.cosmin.nl/?utf8=%E2%9C%93&search_field=all_fields&q=SF-36+-+36-item+Short+Form+Health+Survey++%5Balias%3A+RAND-36%5D%5Balias%3A+Medical+Outcomes+Study+%28MOS%29+SF-36%5D%5D]