COSMIN database

Outcome measures monitoring physical function in children with haemophilia: a systematic review

Authors:
Stephensen, D., Drechsler, W. I., and Scott, O. M.
Abstract:
Our objective was to provide a synthesis of measurement properties for performance-based outcome measures used to evaluate physical function in children with haemophilia. A systematic review of articles published in English using Medline, PEDro, Cinahl and The Cochrane Library electronic databases was conducted. Studies were included if a performance-based method, clinical evaluation or measurement tool was used to record an aspect of physical function in patients with haemophilia aged
DOI:
10.1111/hae.12299
URL:
https://www.ncbi.nlm.nih.gov/pubmed/24252123
Journal:
Haemophilia
issn:
1365-2516 (Electronic)
Publication year:
2014
pages:
306-21
Functional status:
Physical functioning
Age:
Children (0-18)
Disease:
Diseases of and symptoms related to the blood and blood-forming organs and certain disorders involving the immune mechanism
PRO / non-PRO:
Non-patient Reported Outcome
Type of measurement instrument:
4 - Performance-based tests
6 - Clinical rating scales
7 - Observations
Instrument:
6MWT - 6-Minute Walk Test   Proqolid blue crop | Logozuyd
CPE - Colorado Physical Examination scale
Estimated maximal oxygen consumption and maximal aerobic power
HJHS - Hemophilia Joint Health Score
Kinematic and kinetic gait analysis
MABC - Movement Assessment Battery for Children   Logozuyd
Maximal muscle strength
Physical activity
PJS - Petrini Joint Score
ROM - Range of Motion/Movement
Spatiotemporal gait parameters
Standing balance
WFH - World Federation of Hemophilia orthopaedic joint score [alias: Gilbert Score (or: Scale)]