Outcome measures monitoring physical function in children with haemophilia: a systematic review
- Abstract:
- Our objective was to provide a synthesis of measurement properties for performance-based outcome measures used to evaluate physical function in children with haemophilia. A systematic review of articles published in English using Medline, PEDro, Cinahl and The Cochrane Library electronic databases was conducted. Studies were included if a performance-based method, clinical evaluation or measurement tool was used to record an aspect of physical function in patients with haemophilia aged
- DOI:
- 10.1111/hae.12299
- URL:
- https://www.ncbi.nlm.nih.gov/pubmed/24252123
- Journal:
- Haemophilia
- issn:
- 1365-2516 (Electronic)
- Publication year:
- 2014
- pages:
- 306-21
- Functional status:
- Physical functioning
- Age:
- Children (0-18)
- Disease:
- Diseases of and symptoms related to the blood and blood-forming organs and certain disorders involving the immune mechanism
- PRO / non-PRO:
- Non-patient Reported Outcome
- Type of measurement instrument:
- 4 - Performance-based tests
6 - Clinical rating scales
7 - Observations - Instrument:
- 6MWT - 6 Minute Walk Test (versions: 6MWT app; 6MWT Lite app; M6MWT - Modified 6MWT; 6mWTPC - 6MWT on parquet and carpet)
| 
| also see: database.cosmin.nl
CPE - Colorado Physical Examination scale
Estimated maximal oxygen consumption and maximal aerobic power
HJHS - Hemophilia Joint Health Score
Kinematic and kinetic gait analysis
MABC - Movement Assessment Battery for Children |
Maximal muscle strength
Physical activity
PJS - Petrini Joint Score
ROM - Range of Motion/Movement
SB - Standing Balance
Spatiotemporal gait parameters (versions: Dual task gait)
WFH - World Federation of Hemophilia orthopaedic joint score [alias: Gilbert Score (or: Scale)]