COSMIN database

Assessment of arm/hand functioning in children with a congenital transverse or longitudinal reduction deficiency of the upper limb

Authors:
Buffart, L. M., Roebroeck, M. E., Pesch-Batenburg, J. M., Janssen, W. G., and Stam, H. J.
Abstract:
PURPOSE: Selection of appropriate functional tests and questionnaires to assess capacity (tests) and performance (questionnaires) of arm/hand functioning in children with congenital transverse or longitudinal (radius dysplasia) reduction deficiencies of the upper limb.

METHOD: A PubMed Medline search was performed. Tests and questionnaires were evaluated according to three criteria: (1) items represent bimanual daily activities, (2a) quality of movement is scored (tests) or (2b) difficulty in performing a task (questionnaires), (3) instrument is attractive for children aged 4 - 12.

RESULTS: We found 14 functional tests and nine questionnaires to measure arm/hand functioning. Three tests, the Assisting Hand Assessment (AHA), Unilateral Below Elbow Test (UBET) and University of New Brunswick Test of prosthetic function (UNB Test) and two questionnaires, the Prosthetic Upper limb Functional Index (PUFI) and the children's version of the ABILHAND (ABILHAND-Kids) met the criteria.

CONCLUSIONS: Two functional tests (AHA and UBET) and two questionnaires (ABILHAND-Kids and PUFI) were considered appropriate to assess arm/hand functioning in children with congenital reduction deficiencies of the upper limb, but require further study on psychometric properties for these patient groups.
DOI:
10.1080/09638280500158406
URL:
https://www.ncbi.nlm.nih.gov/pubmed/16393838
Journal:
Disabil Rehabil
issn:
0963-8288 (Print)
Publication year:
2006
pages:
85-95
Functional status:
Physical functioning
Age:
Children (0-18)
Disease:
Congenital malformations, deformations and chromosomal abnormalities and related symptoms
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
2 - Interviews
4 - Performance-based tests
5 - Videos
6 - Clinical rating scales
7 - Observations
Instrument:
ABILHAND-Kids   [see: ZUYD (NL)]
AHA - Assisting Hand Assessment
AMAT - Arm Motor Ability Test
AMPS - Assessment of Motor and Process Skills   [see: ZUYD (NL)]
ARAT - Action Research Arm Test   [see: ZUYD (NL)]
ASK - Activities Scale for Kids
BSID - Bayley Scales of Infant Development
CAPP-FSI - Child Amputee Prosthetics Projects-Functional Status Instruments
CAPP-FSIP - Child Amputee Prosthetics Projects-Functional Status Instruments for pre-school children
CAPP-FSIT - Child Amputee Prosthetics Projects-Functional Status Instruments for toddlers
COPM - Canadian Occupational Performance Measure   [see: ZUYD (NL)]
DASH - Disabilities of the Arm, Shoulder and Hand   [see: ZUYD (NL)]
HFEM - Hand Function Evaluation Model
MABC - Movement Assessment Battery for Children   [see: ZUYD (NL)]
MHQ - Michigan Hand outcomes Questionnaire   [see: ZUYD (NL)]
MUUL - Melbourne Assessment of Unilateral Upper Limb Function
PDMS - Peabody Developmental Motor Scales
PEDI - Pediatric Evaluation of Disability Inventory   [see: ZUYD (NL)]
PODCI - Pediatric Outcomes Data Collection Instrument
PUFI - Prosthetic Upper extremity Functional Index
QUEST - Quality of Upper Extremity Skills Test
SHAP - Southampton Hand Assessment Procedure
SODA - Sequential Occupational Dexterity Assessment   [see: ZUYD (NL)]
UBET - Unilateral Below Elbow Test
UNB Test - University of New Brunswick Test of Prosthetics Function