Assessment of arm/hand functioning in children with a congenital transverse or longitudinal reduction deficiency of the upper limb
- Abstract:
- PURPOSE: Selection of appropriate functional tests and questionnaires to assess capacity (tests) and performance (questionnaires) of arm/hand functioning in children with congenital transverse or longitudinal (radius dysplasia) reduction deficiencies of the upper limb.
METHOD: A PubMed Medline search was performed. Tests and questionnaires were evaluated according to three criteria: (1) items represent bimanual daily activities, (2a) quality of movement is scored (tests) or (2b) difficulty in performing a task (questionnaires), (3) instrument is attractive for children aged 4 - 12.
RESULTS: We found 14 functional tests and nine questionnaires to measure arm/hand functioning. Three tests, the Assisting Hand Assessment (AHA), Unilateral Below Elbow Test (UBET) and University of New Brunswick Test of prosthetic function (UNB Test) and two questionnaires, the Prosthetic Upper limb Functional Index (PUFI) and the children's version of the ABILHAND (ABILHAND-Kids) met the criteria.
CONCLUSIONS: Two functional tests (AHA and UBET) and two questionnaires (ABILHAND-Kids and PUFI) were considered appropriate to assess arm/hand functioning in children with congenital reduction deficiencies of the upper limb, but require further study on psychometric properties for these patient groups. - DOI:
- 10.1080/09638280500158406
- URL:
- https://www.ncbi.nlm.nih.gov/pubmed/16393838
- Journal:
- Disabil Rehabil
- issn:
- 0963-8288 (Print)
- Publication year:
- 2006
- pages:
- 85-95
- Functional status:
- Physical functioning
- Age:
- Children (0-18)
- Disease:
- Congenital malformations, deformations and chromosomal abnormalities and related symptoms
- PRO / non-PRO:
- Non-patient Reported Outcome
Patient Reported Outcome - Type of measurement instrument:
- 1 - Questionnaires
2 - Interviews
4 - Performance-based tests
5 - Videos
6 - Clinical rating scales
7 - Observations - Instrument:
- ABILHAND-Kids
AHA - Assisting Hand Assessment
AMAT - Arm Motor Ability Test
AMPS - Assessment of Motor and Process Skills
ARAT - Action Research Arm Test
ASK - Activities Scale for Kids
BSID - Bayley Scales of Infant Development
CAPP-FSI - Child Amputee Prosthetics Projects-Functional Status Instruments
CAPP-FSIP - Child Amputee Prosthetics Projects-Functional Status Instruments for pre-school children
CAPP-FSIT - Child Amputee Prosthetics Projects-Functional Status Instruments for toddlers
COPM - Canadian Occupational Performance Measure
DASH - Disabilities of the Arm, Shoulder and Hand (versions: DASH Modified)
HFEM - Hand Function Evaluation Model
MABC - Movement Assessment Battery for Children
MHQ - Michigan Hand outcomes Questionnaire
MUUL - Melbourne Assessment of Unilateral Upper Limb Function
PDMS - Peabody Developmental Motor Scales
PEDI - Pediatric Evaluation of Disability Inventory
PODCI - Pediatric Outcomes Data Collection Instrument
PUFI - Prosthetic Upper extremity Functional Index
QUEST - Quality of Upper Extremity Skills Test
SHAP - Southampton Hand Assessment Procedure
SODA - Sequential Occupational Dexterity Assessment
UBET - Unilateral Below Elbow Test
UNB Test - University of New Brunswick Test of Prosthetics Function