COSMIN database

Outcome methods used in clinical studies of Chiari malformation Type I: a systematic review

Authors:
Greenberg, J. K., Milner, E., Yarbrough, C. K., Lipsey, K., Piccirillo, J. F., Smyth, M. D., Park, T. S., and Limbrick, D. D.
Abstract:
OBJECT Chiari malformation Type I (CM-I) is a common and often debilitating neurological disease. Efforts to improve treatment of CM-I are impeded by inconsistent and limited methods of evaluating clinical outcomes. To understand current approaches and lay a foundation for future research, the authors conducted a systematic review of the methods used in original published research articles to evaluate clinical outcomes in patients treated for CM-I.
DOI:
10.3171/2014.9.Jns14406
URL:
<Go to ISI>://WOS:000348408400004
https://www.ncbi.nlm.nih.gov/pubmed/25380104
Journal:
Journal of Neurosurgery
issn:
0022-3085
Publication year:
2015
pages:
262-272
Symptom status:
Cognitive/mental state
Physical state
Functional status:
Physical functioning
General health perceptions / HRQoL:
Health-related quality of life
Self-rated health
Overall quality of life:
Overall quality of life
Age:
Adults (18-65)
Children (0-18)
Disease:
Diseases of and symptoms related to the nervous system
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
6 - Clinical rating scales
7 - Observations
8 - Imaging tests
Instrument:
Asgari score (modified)
CCOS - Chicago Chiari Outcome Scale
EQ-5D - EuroQoL-5 Dimensions   Logozuyd
HDI - Headache Disability Inventory   Logozuyd
JOA score - Japanese Orthopaedic Association score
Klekamp & Samii score
KPS - Karnofsky Performance Scale (of: Status)
Limonadi score
NDI - Neck Disability Index    Logozuyd
Noudel et al.’s adapted functional grading system
Rankin scale
SDS - Zung Self-rating Depression Scale
SF-12 - 12-item Short Form Health Survey [alias: RAND-12]
SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: Medical Outcomes Study (MOS) SF-36]]   Proqolid blue crop | Logozuyd | also see: database.cosmin.nl
SIP - Sickness Impact Profile   Logozuyd
VAS for Disease Impact on Daily Life
VASs-pain