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A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research
Authors:
Griffiths, C., Armstrong-James, L., White, P., Rumsey, N., Pleat, J., and Harcourt, D.
Abstract:
Introduction: Patient reported outcome measures (PROMs) can identify important information about patient needs and therapeutic progress. The aim of this review was to identify the PROMs that are being used in child and adolescent burn care and to determine the quality of such scales.
DOI:
10.1016/j.burns.2014.07.018
URL:
<Go to ISI>://WOS:000350089800002https://www.ncbi.nlm.nih.gov/pubmed/25300756
Journal:
Burns
issn:
0305-4179
Publication year:
2015
pages:
212-224
Symptom status:
Cognitive/mental state
Functional status:
Cognitive/mental functioning
Overall quality of life:
Overall quality of life
Age:
Children (0-18)
Disease:
Diseases of and symptoms related to the skin and subcutaneous tissue
PRO / non-PRO:
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
Instrument:
American Burn Association / Shriners Hospitals for Children Burn Outcomes Questionnaires for children 5-18 years old; burn specific BDI-II - Beck Depression Inventory-II Birleson Depression scale Body Esteem Scale for Adolescents & Adults CBSS - Child Behavioural Style Scale Children’s Attitude Towards Their Illness Scale Community Alienation Scale DAQ - Death Anxiety Questionnaire Harter Self-Perception Profile Harter’s Social Support Scale for Children IES - Impact of Event Scale (versions: IES-R; IES-13; CRIES - Children's revised IES; IES-IDs - IES-Intellectual Disabilities) Junior Eysenck Personality Questionnaire MASC - Multidimensional Anxiety Scale for Children (versions: MASC-2) MAS - Manifest Anxiety Scale (versions: MAS-sf; CMAS; RCMAS; RCMAS-2; AMAS; AMAS-e) PedsQL 3.0 Cancer Module - Pediatric Quality of Life Inventory Cancer Module PedsQL - Pediatric Quality of Life Inventory (versions: PedsQL VAS) PH2 - Piers-Harris Self-Concept Scale version 2 PSQ - Perceived Stigmatisation Questionnaire R-Scales – Resiliency Scales for Children and Adolescents RSES - Rosenberg Self-Esteem Scale (versions: RSES-10) SCQ - Social Comfort Questionnaire SDQ - Strengths and Difficulties Questionnaire (versions: SDQ Children and Adolescents; SDQ Youth) Self-Control Schedule Adolescent Version Social Competence with Peers Questionnaire-Pupil version Social Worries Questionnaire–Pupil Version SPP - Self-Perception Profile (versions: SPPC - SPP Children; SPPA - SPP Adults; SPPA - SPP Adolscents) SSRS - Social Skills Rating System-elementary (also Secondary) SWAP - Satisfaction with Appearance Scale (versions: Adapted SWAP) Youth Experience Survey 2.0 Youth Self Report YQOL - Youth Quality of Life Instrument (versions: YQOL-DHH; YQOL-SF; YQOL-CS - Craniofacial Surgery; YQOL-FD - Facial Differences; YQOL-R - YQOL-Research; YQOL-S - YQOL-Surveillance; YQOL-W - Weight Module, 21)
