COSMIN database

Validated questionnaires on intimacy in patients who have had cancer

Hoole, J., Kanatas, A., Calvert, A., Rogers, S. N., Smith, A. B., and Mitchell, D. A.
Problems with intimacy in patients with cancer of the head and neck may not be recognised. Our aim was to review published papers on patient-reported outcomes that record concerns about intimacy, sex, and function, to help develop a tool for use in head and neck cancer. We specifically looked for instruments with evidence of validation in patients with cancer, which could be used to identify problems with intimacy and sexuality. After evaluating 2563 papers, we identified 20 that satisfied our inclusion criteria, and these have been presented in a tabulated form. This review has shown the need to develop a questionnaire on intimacy that is specific to patients with cancer of the head and neck. It is an important issue that must be addressed by clinical and research teams, and will be done most effectively if it is linked to specific interventions.
Br J Oral Maxillofac Surg
1532-1940 (Electronic)
Publication year:
Symptom status:
Emotional state
Physical state
Functional status:
Social functioning
Overall quality of life:
Overall quality of life
Adults (18-65)
Neoplasms and related symptoms
PRO / non-PRO:
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
BCPT Symptom Checklist - Breast Cancer Prevention Trial Symptom Checklist
BSFI - Brief Sexual Function Inventory
Cancer Inventory of Problem Situations
CARES - Cancer rehabilitation evaluation system
CSFQ - Changes in Sexual Functioning Questionnaire (Also: CSFQ-14 - 14 item version)
DT - Distress Thermometer   
EORTC QLQ-H&N35 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Head & Neck 35
Expanded Prostate Cancer Index
FACT-Cx - Functional Assessment of Cancer Therapy-Cervix
FACT-H&N - Functional Assessment of Cancer Therapy-Head and Neck
FSFI - Female Sexual Function Index (and FSFI-BC - Breast Cancer)
GLQ - Gynaecologic Leiden Questionnaire
Patients Concerns Inventory Head and Neck (PCI-H&N)
QLACS - Quality of Life in Adult Cancer Survivors
SAQ - Sexual Activity Questionnaire
SAQ - Sexual Adjustment Questionnaire
Sexual Functioning Questionnaire
Sexual Problem Scale
SVQ - Sexual function-Vaginal changes Questionnaire
UCLA-PCI - University of California Los Angeles-Prostate Cancer Index
WHOQOL - World Health Organization Quality of Life Assessment
Wilmoth Sexual Behaviors Questionnaire