COSMIN database

A systematic review of generic multidimensional patient-reported outcome measures for children, part II: evaluation of psychometric performance of English-language versions in a general population

Authors:
Janssens, A., Rogers, M., Thompson Coon, J., Allen, K., Green, C., Jenkinson, C., Tennant, A., Logan, S., and Morris, C.
Abstract:
OBJECTIVES: The objectives of this systematic review were 1) to identify studies that assess the psychometric performance of the English-language version of 35 generic multidimensional patient-reported outcome measures (PROMs) for children and young people in general populations and evaluate their quality and 2) to summarize the psychometric properties of each PROM.

METHODS: MEDLINE, EMBASE, and PsycINFO were searched. The methodological quality of the articles was assessed using the COnsensus-based Standards for selection of health Measurement INstruments checklist. For each PROM, extracted evidence of content validity, construct validity, internal consistency, test-retest reliability, proxy reliability, responsiveness, and precision was judged against standardized reference criteria.

RESULTS: We found no evidence for 14 PROMs. For the remaining 21 PROMs, 90 studies were identified. The methodological quality of most studies was fair. Quality was generally rated higher in more recent studies. Not reporting how missing data were handled was the most common reason for downgrading the quality. None of the 21 PROMs has had all psychometric properties evaluated; data on construct validity and internal consistency were most frequently reported.

CONCLUSIONS: Overall, consistent positive findings for at least five psychometric properties were found for Child Health and Illness Profile, Healthy Pathways, KIDSCREEN, and Multi-dimensional Student Life Satisfaction Scale. None of the PROMs had been evaluated for responsiveness to detect change in general populations. Further well-designed studies with transparent reporting of methods and results are required.
DOI:
10.1016/j.jval.2015.01.004
URL:
https://www.ncbi.nlm.nih.gov/pubmed/25773569
Journal:
Value Health
issn:
1524-4733 (Electronic)
Publication year:
2015
pages:
334-45
General health perceptions / HRQoL:
Health-related quality of life
Self-rated health
Overall quality of life:
Overall quality of life
Age:
Children (0-18)
Disease:
Codes for special purposes
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
Instrument:
16D - Sixteen-dimensional health-related measure
AQoL-6D - Assessment of Quality of Life-6D
AUQEI - Autoquestionnaire Qualité de Vie Enfant Imagé
CHAQ - Childhood Health Assessment Questionnaire
CHIP-CE - Child Health and Illness Profile-Child Edition
CHQ - Child Health Questionnaire
CHRS - Children’s Health Ratings Scale
CHSCS-PS - Comprehensive Health Status Classification System – Preschool
CHU9D - Child Health Utility 9D
COMQoL-Comprehensive Quality of Life Scale /Questionnaire
COOP/WONCA charts - COOP/WONCA Functional Healh assessment charts   Logozuyd
CQOL - Child Quality of Life Questionnaire
DHP-A - DUKE Health Profile-Adolescent version
EQ-5D-Y - European Quality of Life-5 Dimensions (youth version), 5 item
Exqol - Exeter Quality of Life Measure
FSIIR - Functional Status (II) Revised
GCQ - Generic Children’s Quality of Life Measure
HALFS - Health and Life Functioning Scale
HAY - How Are You
HP - Healthy Pathways
HUI - Health Utilities Index
ITQoL - Infant Toddler Quality of Life Questionnaire
Kiddy-KINDL
KIDSCREEN - 52 items - Health Related Quality of Life Questionnaire for Children and Young People and their Parents-52 items
Nordic QOL-Q - Nordic Quality of Life Questionnaire for Children
PedsQL 4.0 Generic Core Scales - Pediatric Quality of Life Inventory Generic Core Scales
QOLQA - Quality of Life Questionnaire for Adolescents
QoLQC - Quality of Life Questionnaire for Children
QoLR-AV - Quality of Life Profile: Adolescent Version
SLSS - Student Life Satisfaction Scale
TNO-AZL/DUX-25 - Dutch Children TNO-AZL Quality of Life Questionnaire
VSP-A - Vecú de Santé Percué Adolescent
WCHMP - Warwick Child Health & Morbidity Profile
YQOL - Youth Quality of Life Instrument