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A Systematic Review of Patient-Reported Outcome Measures Used in Adult Burn Research
Authors:
Griffiths, C., Guest, E., White, P., Gaskin, E., Rumsey, N., Pleat, J., and Harcourt, D.
Abstract:
Patient-reported outcome measures (PROMs) are vital for evaluating patient needs and therapeutic progress. This review aimed to identify the PROMs used in adult burn care and establish their quality. Computerized bibliographic searches of Psychinfo, Social Sciences Citation Index, Cinahl, Psycharticles, AMED, Medline, and HAPI were used to find English-language articles using English-language PROMs from January 2001 to September 2016. Psychometric quality assessment of the PROMs was conducted. A total of 117 studies achieved the entry criteria and reported using 77 different PROMs (71 generic and 6 burn-specific). Overall, the psychometric quality of the PROMs was low; only 17 (13 generic and 4 burn-specific) had psychometric evidence appropriate to adults with burn injuries completing an English language version of the PROM. Although this review identified a number of generic and burn-specific PROMs that have some psychometric evidence with adult burn patients, research is still needed to further examine these preexisting measures and validate them in different languages. This will enable researchers and clinicians to better understand the potential impact of a burn injury on adults, and evaluate the effectiveness of therapeutic interventions.
DOI:
10.1097/bcr.0000000000000474
URL:
https://watermark.silverchair.com/01253092-201703000-00015.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAdcwggHTBgkqhkiG9w0BBwagggHEMIIBwAIBADCCAbkGCSqGSIb3DQEHATAeBglghkgBZQMEAS4wEQQMpCltm6YeISU3IMMNAgEQgIIBiio_IdrC_p8PByTpNLevRr_SnYe2iBzRJxUisHnl2V2S98TWM4tqWl_HAEtFBj91schc4ob4o4QVAPA_8XyXu_-OUxPwmiZOJwiFqscFhqlVd4TH7GKxprsb4sp0luHw_pphne-dZeHpYcvaCzD6tum2B2fwLcEmLOne409kRm61SYqjRxf1LoyI8oi4V9npgU2-DAQLWWmwT0F_9ksEO5y0R2F4XMFRnjkObd844fKAat2wLy5Sp43pKQvoh9tpxoKKITiwvFdOCtiNjIEbuP_rDFo1jEEBwDW9WI5_I1D7yop8Pd3PGXSoTBTBK7UlEstC68WGuUjlFWGKAO0yMxiFjisptkK1A1P6MLLhHFtFikuTUsfxEDRKjhaZ-d2OOJTkFa2g9XHGABTBhxDp5kjYwco8Qj-DI2sM68XuFFlebjLfc072yo8gc6N8iIMnB392GFavaIL0TRYAzIMynwGJgc_MzBW1mQvePQEBATH1gs4ETtxbl-tRjUyMoZd_uMAOLT8umkeKznM
Journal:
J Burn Care Res
issn:
1559-047x
Publication year:
2017
pages:
e521-e545
Symptom status:
Cognitive/mental state
Functional status:
Physical functioning
Overall quality of life:
Overall quality of life
Age:
Adults (18-65)
Disease:
Diseases of and symptoms related to the skin and subcutaneous tissue
PRO / non-PRO:
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
Instrument:
5D Itch Scale - 5 Dimensions Itch Scale AUDIT - Alcohol Use Disorders Identification Test (versions: AUDIT-3; AUDIT-C - AUDIT-Consumption) BDI - Beck Depression Inventory (versions: mBDI; BDI-Y; BDI-SF) BES - Body Esteem Scale BFI - Brief Fatigue Inventory (versions: MBFI - ModiefiedBFI)) BSHS - Burn Specific Health Scale (versions: BSHS-A - BSHS-Abbreviated; BSHS-B - BSHS-Brief; BSHS-R - BSHS-Revised) BSI - Brief Symptom Inventory (versions: BSI-6; BSI-18; BSI-53) BSPAS - Burn-Specific Pain Anxiety Scale (versions: BSPAS-A - BSPAS-abbreviated) CAGE Questionnaire (versions: alcohol versions; CAGE-AID - drugs; Autism camouflaging) CBQ - Coping with Burns Questionnaire CIQ - Community Integration Questionnaire COPE - Coping Orientation to Problems Experienced Inventory (versions: A-COPE - Adolscent COPE; Kid-COPE; Brief-COPE - SEE Brief-COPE) CSS - Chronic Stress Scale DAS - Derriford Appearance Scale (versions: DAS-24; DAS-59; DAS-SF) DASH - Disabilities of the Arm, Shoulder and Hand (versions: DASH Modified; M2-DASH - Manchester modified DASH) Davidson Trauma Scales DLQI - Dermatology Life Quality Index EPQ - Eysenck Personality Questionnaire (versions: EPQ-SV; EPQ-R) ESDS-D - Epidemiologic Studies Depression Scale-D FASQ - Functional Assessment Screening Questionnaire FES - Family Environment Scale GHQ - General Health Questionnaire (versions: original = GHQ-60; GHQ-7; GHQ-12; GHQ-20; GHQ-28; GHQW-30; GHQ-36) HADS - Hospital Anxiety and Depression Scale IES - Impact of Event Scale (versions: IES-R; IES-13; CRIES - Children's revised IES; IES-IDs - IES-Intellectual Disabilities) ISEL - Interpersonal Support Evaluation List (versions: ISEL-12; ISEL-QoL) Kessler Psychological Distress Scale (versions: K-10; K-5; K-6) LEFS - Lower Extremity Function Scale LLFI - Lower Limb Functional Index (versions: LLFI-10) LOT - Life Orientation Test (versions: LOT-R; YLOT - Youth LOT) LSI - Life Satisfaction Index MBSRQ - Multidimensional Body-Self Relations Questionnaire (also BSRQ) MFQ - Mood and Feelings Questionnaire (versions: SMFQ - Short MFQ) MHI - Mental Health Inventory (verisons: MHI-5; MHI-13; MHI-17; MHI-38) MHQ - Michigan Hand outcomes Questionnaire (versions: BriefMHQ) MPQ - McGill Pain Questionnaire (versions MPQ-SF; SF-MPQ; LF-MPQ; MPQ-VAS)
MSPSS - Multidimensional Scale of Perceived Social Support NEO-PI - NEO-Personality Inventory (versions; NEO-PI-R) NPS - Neuropathic Pain Scale (versions: NPS-R) ODI - Oswestry Disability Index (versions: ODI 2.0; ODI 2.1a; ODI AAOS/MODEMS; chir ODI - chiropractor ODI; revised ODI; modified ODI) Older Adult Exercise Status Inventory PCL- PTSD Checklist (versions: PCL-C - Civilian Version; PTSD-M - Military Version; unspecified; PCL-5 - PCL for DSM-5) PDM - Pain Detect Measure PFQ - Personality Factor Questionnaire POMS - Profile of Mood States (versions: POMS-11; POMS-14; POMS-37; POMS-65; Brief POMS; POMS-Adolescent; POMS-sf; revised POMS; POMS-F - POMS-fatigue; POMS-Bi - POMS-Bipolar) POSAS - Patient and Observer Scar Assessment Scale (versions: mPOSAS) Posttraumatic Growth Inventory PPP - Pain Patient Profile PSEQ - Pain Self-Efficacy Questionnaire (versions: PSEQ-4; PSEQ-2A; PSEQ-2B) PSQ - Perceived Stigmatisation Questionnaire QLQ - Quality of Life Questionnaire Quick DASH - Quick Disabilities of the Arm, Shoulder and Hand (versions: Modified Quick DASH-9; Quick DASH sport) RAND Mental Health Inventory SASRQ - Stanford Acute Stress Reaction Questionnaire SCQ - Social Comfort Questionnaire SF-12 - 12-item Short Form Health Survey [alias: RAND-12] (versions: SF-12v2; VR-12 - Veterans SF-12; SF-12 MCS; SF-12 PCS) SF-36 - 36-item Short Form Health Survey [alias: RAND-36][alias: MOS SF-36]] (versions: VSF-36 LoA - Visual Version of the SF-36 Limitations of Physical Activities domain; VR-36 - Veterans SF-36) database.cosmin.nl SIP - Sickness Impact Profile (versions: SIP-8; SIP-68; SIP-136; SIP-SV; UKSIP; SIP/ALS-19) SPS - Suicide Probability Scale STAI - State-Trait Anxiety Inventory (versions: STAI-X - STAI Form X; STAI-Y - STAI Form Y; STAI sf; STAI-4; STAI-6) SWAP - Satisfaction with Appearance Scale (versions: Adapted SWAP) SWLS - Satisfaction With Life Scale Tellegen Absorption Scale UEFI -Upper Extremity Functional Index WCCL - The Ways of Coping Checklist (versions: WCCL-R) WHOQOL-BREF - World Health Organization Quality of Life questionnaire–Abbreviated Questionnaire (versions: WHOQOL-HIV-BREF; WHOQOL-BREF dialysis) YABOQ - Young Adult Burn outcome Questionnaire YASR - Young Adult Self-Report Questionnaire
