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Psycho-oncology assessment in Chinese populations: a systematic review of quality of life and psychosocial measures
Authors:
Hyde, M. K., Chambers, S. K., Shum, D., Ip, D., and Dunn, J.
Abstract:
This systematic review describes psychosocial and quality of life (QOL) measures used in psycho-oncology research with cancer patients and caregivers in China. Medline and PsycINFO databases were searched (1980-2014). Studies reviewed met the following criteria: English language; peer-reviewed; sampled Chinese cancer patients/caregivers; developed, validated or assessed psychometric properties of psychosocial or QOL outcome measures; and reported validation data. The review examined characteristics of measures and participants, translation and cultural adaptation processes and psychometric properties of the measures. Ninety five studies met review criteria. Common characteristics of studies reviewed were they: assessed primarily QOL measures, sampled patients with breast, colorectal, or head and neck cancer, and validated existing measures (>80%) originating in North America or Europe. Few studies reported difficulties translating measures. Regarding psychometric properties of the measures >50% of studies reported subscale reliabilities
DOI:
10.1111/ecc.12367
URL:
https://onlinelibrary.wiley.com/doi/pdf/10.1111/ecc.12367
Journal:
Eur J Cancer Care (Engl)
issn:
0961-5423
Publication year:
2016
pages:
691-718
Symptom status:
Cognitive/mental state
General health perceptions / HRQoL:
Health-related quality of life
Overall quality of life:
Overall quality of life
Age:
Adults (18-65)
Disease:
Neoplasms and related symptoms
PRO / non-PRO:
Non-patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
Instrument:
AIS - Athens Insomnia Scale BFI - Brief Fatigue Inventory (versions: MBFI - ModiefiedBFI)) BPI - Brief Pain Inventory (versions: BPI-sf; mBPI; mBPI-SF; BPI-PR - BPI-Proxy Report; mBPI-Proxy; BPI-DPN - BPI-Diabetic Painful Neuropathy; BPI-20) CCCS - Chinese Cancer Coherence Scale CECS - Courtauld Emotional Control Scale CEES - Cancer Experience and Efficacy Scale CFS - Cancer Fatigue Scale CLCSS - Cataldo Lung Cancer Stigma Scale CMSAS - Condensed Memorial Symptom Assessment Scale CNQ-SF-HN - Cancer Needs Questionnaire- Short Form-Head and Neck CQOLC - Caregiver Quality of Life Index–Cancer (versions: CQOLC-LT - CQOLC-Liver Transplant) CRA - Caregiver Reaction Assessment DCS - Decisional Conflict Scale DT - Distress Thermometer (versions: DT for parents) EORTC QLQ-BR23 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires, specific module to Breast cancer EORTC QLQ-C30 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Core-30 item (versions: EORTC QLQ-C24; EORTC QLQ-C30-v1; EORTC QLQ-C30-v2; EORTC QLQ-C30v3) EORTC QLQ-CR38 - European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire in patients with Colorectal cancer 38 item EORTC QLQ-CX24 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Cervical Cancer module EORTC QLQ-H&N35 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Head & Neck 35 (versions: EORTC QLQ-H&N43) EORTC QLQ-LC13 - European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire in patients with Lung cancer 13 item EORTC QLQ-OES18 - European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire in patients with oesophageal cancer 18 items EORTC QLQ-OV28 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Ovarian cancer module 28 items EORTC QLQ-PR - European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire in patients with prostate cancer (versions: EORTC QLQ-PR19; EORTC QLQ-PR25) EORTC QLQ-STO22 - European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire in patients with gastric cancer 22 item FACT-B - Functional Assessment of Cancer Therapy-Breast cancer (versions: FACT-B+4 - plus Arm Morbidity) FACT-BMT - Functional Assessment of Cancer Therapy-Bone Marrow Transplant FACT-C - Functional Assessment of Cancer Therapy-Colorectal FACT-Cx - Functional Assessment of Cancer Therapy-Cervical Cancer FACT-G - Functional Assessment of Cancer Therapy-General (versions: FACT-G7) FACT-H&N - Functional Assessment of Cancer Therapy-Head and Neck FACT-L - Functional Assessment of Cancer Therapy-Lung FACT-NP - Functional Assessment of Cancer Therapy-Nasopharyngeal FLIC - Functional Living Interview questionnaire for Cancer FSI - Fatigue Symptom Inventory HADS - Hospital Anxiety and Depression Scale ICD-10 CRF - International Statistical Classification of Diseases and Related Health Problems for Cancer Related Fatigue IES - Impact of Event Scale (versions: IES-R; IES-13; CRIES - Children's revised IES; IES-IDs - IES-Intellectual Disabilities) IIRS - Illness Intrusion Rating Scale MAC - Mental Adjustment to Cancer Scale (also MACS) (versions: Mini-MAC) MASQ - Mood and Anxiety Symptom Questionnaire (versions: MASQ-SF) MDASI-TCM - M.D. Anderson Symptom Assessment Inventory- Traditional Chinese Medicine Symptoms Evaluation Scale MFI - Multidimensional Fatigue Inventory (versions: MFI-20; MFI-SF) MFSI - Multidimensional Fatigue Symptom Inventory (versions: MFSI-20; MFSI-30; MFSI-SF) MPI - Multidimensional Pain Inventory MQOL - McGill Quality of Life Questionnaire [alias: McGill QoL; MQOL-CSF - MQOL-Cardiff Short form] (versions: MQOL-7; MQOL-11) MSAS - Memorial Symptom Assessment Scale (versions: MSAS-SF; MSAS-family; MSAS-caregivers; MSAS-hospice staff) PCSI - Parental Coping Strategy Inventory PL - Problem List (versions: modified PL for AYA) PMCPI - Perceived Meanings of Cancer Pain Inventory PSI - Parenting Stress Index (also: PSIQuestioonnaire) (versions: PSI-SF) PSQI - Pittsburgh Sleep Quality Index PTGI - Post-Traumatic Growth Inventory PWS-C - Psychological Well-Being Scale for Caregivers QLASTCM - Quality of Life Assessment System based on Traditional Chinese Medicine (versions: QLASTCM-LU - QLASTCM-Lung Ca; QLASTCM-Ga - QLASTCM-Gastric Ca) QLICP-BR - Quality of Life Instruments for Cancer Patients-Breast Cancer QLICP-CR - Quality of Life Instruments for Cancer Patients-Colorectal Cancer QLICP-GM - Quality of Life Instruments for Cancer Patients General Module QLICP-HN - Quality of Life Instruments for Cancer Patients-Head and Neck Cancer QLICP-LU - Quality of Life Instruments for Cancer Patients-Lung Cancer QLICP-ST - Quality of Life Instruments for Cancer Patients-Stomach Cancer QOL-LC - Quality of Life Instrument for Patients with Liver Cancer QOL-NPC - Quality of Life for Nasopharyngeal Carcinoma QOL-RTI - Quality of Life Radiation Therapy Index (versions: QOL-RTI-H&N - Head and Neck) RS - Resilience Scale (versions: Shortened RS; BRS - Brief RS) SAS - Social Adjustment Scale (versions: Young People; SAS II) SCFS - Schwartz Cancer Fatigue Scale (versions: SCFS-6; SCFS-R) SCNS - Supportive Care Needs Survey (versions: SCNS-SF; SCNS-SF34; SCNS-LF59; SCNS-P&C - SCNS-Partner and Caregivers; SCNS-ST9 - SCNS-Screening Tool-9; SCNS34-BS - SCNS 34 +brain subscale) SDS - Spiritual Distress Scale SF-6D - Short-Form 6D (derived from SF-36 or F-12) SOC - Sense of Coherence Scale (versions: SOC-9; SOC-13; SOC-29; SOC-81) SRQS - Social Relational Quality Scale VAS - Visual Analogue Scale (versions: vertical; horizontal; 0-10; 0-100)
