COSMIN database

Psycho-oncology assessment in Chinese populations: a systematic review of quality of life and psychosocial measures

Authors:
Hyde, M. K., Chambers, S. K., Shum, D., Ip, D., and Dunn, J.
Abstract:
This systematic review describes psychosocial and quality of life (QOL) measures used in psycho-oncology research with cancer patients and caregivers in China. Medline and PsycINFO databases were searched (1980-2014). Studies reviewed met the following criteria: English language; peer-reviewed; sampled Chinese cancer patients/caregivers; developed, validated or assessed psychometric properties of psychosocial or QOL outcome measures; and reported validation data. The review examined characteristics of measures and participants, translation and cultural adaptation processes and psychometric properties of the measures. Ninety five studies met review criteria. Common characteristics of studies reviewed were they: assessed primarily QOL measures, sampled patients with breast, colorectal, or head and neck cancer, and validated existing measures (>80%) originating in North America or Europe. Few studies reported difficulties translating measures. Regarding psychometric properties of the measures >50% of studies reported subscale reliabilities
DOI:
10.1111/ecc.12367
URL:
https://onlinelibrary.wiley.com/doi/pdf/10.1111/ecc.12367
Journal:
Eur J Cancer Care (Engl)
issn:
0961-5423
Publication year:
2016
pages:
691-718
Symptom status:
Cognitive/mental state
Emotional state
General health perceptions / HRQoL:
Health-related quality of life
Overall quality of life:
Overall quality of life
Age:
Adults (18-65)
Disease:
Neoplasms and related symptoms
PRO / non-PRO:
Non-patient Reported Outcome
Patient Reported Outcome
Type of measurement instrument:
1 - Questionnaires
Instrument:
AIS - Athens Insomnia Scale
BFI - Brief Fatigue Inventory
BPI - Brief Pain Inventory
CCCS - Chinese Cancer Coherence Scale
CECS - Courtauld Emotional Control Scale
CEES - Cancer Experience and Efficacy Scale
CFS - Cancer Fatigue Scale (Also C-CSF - Chinese version)
CLCSS-C - Cataldo Lung Cancer Stigma Scale Chinese Version
CMSAS - Condensed Memorial Symptom Assessment Scale
CNQ-SF-HN - Cancer Needs Questionnaire- Short Form-Head and Neck
CQOLC-M - Caregiver Quality of Life Index- Cancer- Mandarin
CRA - Caregiver Reaction Assessment Scale
CSAS - Chinese Social Adjustment Scale
DCS-C - Decisional Conflict Scale - Chinese Version
DT - Distress Thermometer   [see: ZUYD (NL)]
EORTC QLQ-BR23 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires, specific module to Breast cancer
EORTC QLQ-C30 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Core-30 item (ALSO shortened version)   [see: ZUYD (NL)]
EORTC QLQ-CR38 -EORTC quality of life in patients with Colorectal cancer 38 item
EORTC QLQ-CX24 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Cervical Cancer module
EORTC QLQ-H&N35 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaires Head & Neck 35
EORTC QLQ-LC13 -EORTC quality of life in patients with Lung cancer 13 item
EORTC QLQ-OES18 -EORTC quality of life in patients with oesophageal cancer 18 items
EORTC QLQ-OV28 - European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Ovarian cancer module 28 items
EORTC QLQ-PR25 -EORTC quality of life in patients with prostate cancer 25 item
EORTC QLQ-STO22 -EORTC quality of life in patients with gastric cancer 22 item
FACT-B - Functional Assessment of Cancer Therapy questionnaire for Breast cancer
FACT-BMT - Functional Assessment of Cancer Therapy Bone Marrow Transplant
FACT-C - Functional Assessment of Cancer Therapy Colorectal
FACT-Cx - Functional Assessment of Cancer Therapy Cervix
FACT-G - Functional Assessment of Cancer Therapy-General
FACT-H&N - Functional Assessment of Cancer Therapy Head and Neck
FACT-L - Functional Assessment of Cancer Therapy Lung
FACT-NP - Functional Assessment of Cancer Therapy Nasopharyngeal
FLIC - Functional Living Interview questionnaire for Cancer
FSI - Fatigue Symptom Inventory
HADS - Hospital Anxiety and Depression Scale   [see: ZUYD (NL)]
ICD-10 CRF - International Statistical Classification of Diseases and Related Health Problems for Cancer Related Fatigue
IES-C - Impact of Event Scale Chinese Version
IIRS - Illness Intrusion Rating Scale
MAC (Also: Mini-MAC) - (Mini-) Mental Adjustment to Cancer
MASQ-SF - Mood and Anxiety Symptom Questionnaire- Short Form
MDASI-TCM - M.D. Anderson Symptom Assessment Inventory- Traditional Chinese Medicine Symptoms Evaluation Scale
MFI - Multidimensional Fatigue Inventory (also version with 20 items - MFI-20) (Also Swedish MFI, French-Canadian MFI and French MFI)   [see: ZUYD (NL)]
MFSI-SF - Multidimensional Fatigue Symptom Inventory-Short Form
MPI - Multidimensional Pain Inventory   [see: ZUYD (NL)]
MQOL - McGill Quality of Life Questionnaire (ALSO: MQOL-CSF - revised version, Cardiff Short form)
MSAS - Memorial Symptom Assessment Scale (modifications exist for family caregivers and for hospice staff)
PCSI - Parental Coping Strategy Inventory
PL - Problem List   [see: ZUYD (NL)]
PMCPI - Perceived Meanings of Cancer Pain Inventory
PSI - Parenting Stress Index (also Short Form)
PSQI - Pittsburgh Sleep Quality Index
PTGI - Post-Traumatic Growth Inventory
PWS-C - Psychological Well-Being Scale for Caregivers
QLASTCM-LU - Quality of Life Assessment System for Lung Cancer based on Traditional Chinese Medicine
QLICP-BR - Quality of Life Instruments for Cancer Patients-Breast Cancer
QLICP-CR - Quality of Life Instruments for Cancer Patients-Colorectal Cancer
QLICP-GM - Quality of Life Instruments for Cancer Patients General Module
QLICP-HN - Quality of Life Instruments for Cancer Patients-Head and Neck Cancer
QLICP-LU - Quality of Life Instruments for Cancer Patients-Lung Cancer
QLICP-ST - Quality of Life Instruments for Cancer Patients-Stomach Cancer
QOL-LC - Quality of Life Instrument for Patients with Liver Cancer
QOL-NPC - Quality of Life for Nasopharyngeal Carcinoma
QOL-RTI-H&N - Quality of Life Radiation Therapy Instrument-Head and Neck
RS-14 - Resilience Scale-14 items
SCFS-r - Schwartz Cancer Fatigue Scale revised
SCNS-SF34-C - Supportive Care Needs Survey- Short Form-Chinese Version
SDS - Spiritual Distress Scale
Sense of Coherence Scale (SOC) ; SOC-13 (13 items) ; SOC-81 (81 items); SOC-29 (29 items); SOC-9 (9 items)
SF-6D - Short-Form 6D
SRQS - Social Relational Quality Scale
VAS - Visual Analogue Scale   [see: ZUYD (NL)]