Measurement properties of questionnaires assessing participation in children and adolescents with a disability: a systematic review
Authors:
Rainey, Linda, van Nispen, Ruth, van der Zee, Carlijn, and van Rens, Ger
Abstract:
PURPOSE: To critically appraise the measurement properties of questionnaires measuring participation in children and adolescents (0-18 years) with a disability.
METHODS: Bibliographic databases were searched for studies evaluating the measurement properties of self-report or parent-report questionnaires measuring participation in children and adolescents (0-18 years) with a disability. The methodological quality of the included studies and the results of the measurement properties were evaluated using a checklist developed on consensus-based standards.
RESULTS: The search strategy identified 3,977 unique publications, of which 22 were selected; these articles evaluated the development and measurement properties of eight different questionnaires. The Child and Adolescent Scale of Participation was evaluated most extensively, generally showing moderate positive results on content validity, internal consistency, reliability and construct validity. The remaining questionnaires also demonstrated positive results. However, at least 50 % of the measurement properties per questionnaire were not (or only poorly) assessed.
CONCLUSIONS: Studies of high methodological quality, using modern statistical methods, are needed to accurately assess the measurement properties of currently available questionnaires. Moreover, consensus is required on the definition of the construct 'participation' to determine content validity and to enable meaningful interpretation of outcomes
Cognitive/mental functioning Physical functioning Role functioning Social functioning
Overall quality of life:
Overall quality of life
Age:
Children (0-18)
Disease:
Certain conditions originating in the perinatal period and related symptoms Codes for special purposes Congenital malformations, deformations and chromosomal abnormalities and related symptoms Diseases of and symptoms related to the musculoskeletal system and connective tissue Diseases of and symptoms related to the nervous system Factors influencing health status and contact with health services Injury, poisoning and certain other consequences of external causes Mental and behavioural disorders and related symptoms
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