family caregivers - COSMIN database Search Results

21. Assessment of patient-reported outcome measures used in corneal transplantation: a systematic review

Author:: Prem Senthil, M. Chakraborty, R. Lim, J.
Publication year:: 2022
DOI:: 10.1080/08164622.2022.2033106.

22. The measurement of burden of care in serious mental illness: a qualitative review

Author:: Vella, S. L. and Pai, N.
Publication year:: 2013
DOI:: 10.1177/0004867412468494

23. Tools Measuring Quality of Death, Dying, and Care, Completed after Death: Systematic Review of Psychometric Properties

Author:: Kupeli, N., Candy, B., Tamura-Rose, G., Schofield, G., Webber, N., Hicks, S. E., Floyd, T., Vivat, B., Sampson, E. L., Stone, P., and Aspden, T.
Publication year:: 2019
DOI:: 10.1007/s40271-018-0328-2

24. A review of instruments developed to measure outcomes for carers of people with mental health problems

Author:: Harvey, K., Catty, J., Langman, A., Winfield, H., Clement, S., Burns, E., White, S., and Burns, T.
Publication year:: 2008
DOI:

25. A critical review of patient and parent caregiver oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in spinal muscular atrophy

Author:: Messina, S., Frongia, A. L., Antonaci, L., Pera, M. C., Coratti, G., Pane, M., Pasternak, A., Civitello, M., Montes, J., Mayhew, A., Finkel, R., Muntoni, F., Mercuri, E., and group, I. SMAc
Publication year:: 2019
DOI:: 10.1016/j.nmd.2019.10.001

26. Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN

Author:: Carlton, J. and Powell, P. A.
Publication year:: 2022
DOI:: 10.1186/s12955-022-01964-4

27. Evidence-Base Update for Parenting Stress Measures in Clinical Samples

Author:: Holly, L. E., Fenley, A. R., Kritikos, T. K., Merson, R. A., Abidin, R. R., and Langer, D. A.
Publication year:: 2019
DOI:: 10.1080/15374416.2019.1639515

28. Measures used to assess burden among caregivers of stroke patients: a review

Author:: Visser-Meily, J. M., Post, M. W., Riphagen, II, and Lindeman, E.
Publication year:: 2004
DOI:: 10.1191/0269215504cr776oa

29. Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument

Author:: Waters, E., Davis, E., Ronen, G. M., Rosenbaum, P., Livingston, M., and Saigal, S.
Publication year:: 2009
DOI:: 10.1111/j.1469-8749.2009.03324.x

30. Informal caregiving in COPD: A systematic review of instruments and their measurement properties

Author:: Cruz, J., Marques, A., Machado, A., O'Hoski, S., Goldstein, R., and Brooks, D.
Publication year:: 2017
DOI:: 10.1016/j.rmed.2017.05.002

31. Patient-reported outcome measures in oral lichen planus: A comprehensive review of the literature with focus on psychometric properties and interpretability

Author:: Wiriyakijja, P., Fedele, S., Porter, S. R., Mercadante, V., and Ni Riordain, R.
Publication year:: 2018
DOI:: 10.1111/jop.12604

32. Parental functioning in the context of adolescent chronic pain: a review of previously used measures

Author:: Jordan, A., Eccleston, C., and Crombez, G.
Publication year:: 2008
DOI:

33. Patient- and Caregiver-Reported Assessment Tools for Palliative Care: Summary of the 2017 Agency for Healthcare Research and Quality Technical Brief

Author:: Aslakson, R. A., Dy, S. M., Wilson, R. F., Waldfogel, J., Zhang, A., Isenberg, S. R., Blair, A., Sixon, J., Lorenz, K. A., and Robinson, K. A.
Publication year:: 2017
DOI:: 10.1016/j.jpainsymman.2017.04.022

34. Assessing unmet needs in advanced cancer patients: a systematic review of the development, content, and quality of available instruments

Author:: Rimmer, B., Crowe, L., Todd, A., and Sharp, L.
Publication year:: 2021
DOI:: 10.1007/s11764-021-01088-6

35. Quality of life instruments for caregivers of patients with cancer - A review of their psychometric properties

Author:: Edwards, B. and Ung, L.
Publication year:: 2002
DOI:: Doi 10.1097/00002820-200210000-00002

36. Systematic review of tools to measure outcomes for young children with autism spectrum disorder

Author:: McConachie, Helen, Parr, Jeremy R., Glod, Magdalena, Hanratty, Jennifer, Livingstone, Nuala, Oono, Inalegwu P., Robalino, Shannon, Baird, Gillian, Beresford, Bryony, Charman, Tony, Garland, Deborah, Green, Jonathan, Gringras, Paul, Jones, Glenys, Law, James, Le Couteur, Ann S., Macdonald, Geraldine, McColl, Elaine M., Morris, Christopher, Rodgers, Jacqueline, Simonoff, Emily, Terwee, Caroline B., and Williams, Katrina
Publication year:: 2015
DOI:

37. Use of family proxies in quality of life research for cancer patients at the end of life: a literature review

Author:: Tang, S. T. and McCorkle, R.
Publication year:: 2002
DOI:: 10.1081/cnv-120005928

38. A systematic review of patient-reported outcome measures in paediatric otolaryngology

Author:: Powell, J., Powell, S., and Robson, A.
Publication year:: 2018
DOI:: 10.1017/s0022215117002420

39. Systematic Literature Review of Health-Related Quality-of-Life Measures for Caregivers of Older Adult Trauma Patients

Author:: Haines, K., Lumpkin, S. T., Grisel, B., Kaur, K., Cantrell, S., Freeman, J., Tripoli, T., Gallagher, S., Agarwal, S., Cox, C. E., Schmader, K., and Reeve, B. B.
Publication year:: 2024
DOI:: 10.1016/j.jss.2024.01.011

40. Patient Reported Outcomes Instruments in Schizophrenia: A Review of Psychometric Properties

Author:: Cadi-Soussi, Aurelie Millier, Emilie Clay, Insaf Charaf, Deven Chauhan, Venkatesha Murthy, Mondher Toumi, and Nadia
Publication year:: 2014
DOI:

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