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31. A critical review of patient and parent caregiver oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in spinal muscular atrophy

Author:: Messina, S., Frongia, A. L., Antonaci, L., Pera, M. C., Coratti, G., Pane, M., Pasternak, A., Civitello, M., Montes, J., Mayhew, A., Finkel, R., Muntoni, F., Mercuri, E., and group, I. SMAc
Publication year:: 2019
DOI:: 10.1016/j.nmd.2019.10.001

32. Psychometric properties of carer-reported outcome measures in palliative care: A systematic review

Author:: Michels, C. T., Boulton, M., Adams, A., Wee, B., and Peters, M.
Publication year:: 2016
DOI:: 10.1177/0269216315601930

33. Measuring the impact of informal elderly caregiving: a systematic review of tools

Author:: Mosquera, I., Vergara, I., Larranaga, I., Machon, M., del Rio, M., and Calderon, C.
Publication year:: 2016
DOI:: 10.1007/s11136-015-1159-4

34. Instruments to measure interaction of mothers and newborns: A systematic review

Author:: Nascimento, T. F., Bocchi, S. C. M., Trenado, R. M., Cerezo, M. A., and Jensen, R.
Publication year:: 2023
DOI:: 10.1016/j.infbeh.2023.101825

35. Assessment of the need for palliative care as perceived by individual cancer patients and their families: a review of instruments for improving patient participation in palliative care

Author:: Osse, B. H., Vernooij-Dassen, M. J., de Vree, B. P., Schade, E., and Grol, R. P.
Publication year:: 2000
DOI:: 10.1002/(sici)1097-0142(20000215)88:4<900::aid-cncr22>3.0.co;2-2

36. A psychometric appraisal of positive psychology outcome measures in use with carers of people living with dementia: a systematic review

Author:: Pione, R. D., Spector, A., Cartwright, A. V., and Stoner, C. R.
Publication year:: 2021
DOI:: 10.1017/s1041610220003464

37. A systematic review of patient-reported outcome measures in paediatric otolaryngology

Author:: Powell, J., Powell, S., and Robson, A.
Publication year:: 2018
DOI:: 10.1017/s0022215117002420

38. Assessment of patient-reported outcome measures used in corneal transplantation: a systematic review

Author:: Prem Senthil, M. Chakraborty, R. Lim, J.
Publication year:: 2022
DOI:: 10.1080/08164622.2022.2033106.

39. Assessing the needs of informal caregivers to cancer survivors: a review of the instruments

Author:: Prue, G., Santin, O., and Porter, S.
Publication year:: 2015
DOI:: 10.1002/pon.3609

40. Assessing unmet needs in advanced cancer patients: a systematic review of the development, content, and quality of available instruments

Author:: Rimmer, B., Crowe, L., Todd, A., and Sharp, L.
Publication year:: 2021
DOI:: 10.1007/s11764-021-01088-6