family caregivers - COSMIN database Search Results

1. A Systematic Review of the Psychosocial Measures Used in Teenage and Young Adult Cancer

Author:: Hughes, K., Blackett, L., Jacobson, C. E. H., Henley, S. M. D., and Carr, E.
Publication year:: 2023
DOI:: 10.1089/jayao.2023.0051

2. Assessing the needs of informal caregivers of patients with chronic non-communicable diseases: A systematic review of self-assessment tools

Author:: Yang, P., Ma, M., Guan, Q., Du, X., and Fan, Y.
Publication year:: 2023
DOI:: 10.1002/nop2.2008

3. Instruments to measure interaction of mothers and newborns: A systematic review

Author:: Nascimento, T. F., Bocchi, S. C. M., Trenado, R. M., Cerezo, M. A., and Jensen, R.
Publication year:: 2023
DOI:: 10.1016/j.infbeh.2023.101825

4. Patient-reported outcome measures for advanced cancer in China: A systematic review of cross-cultural adaptation and psychometric properties

Author:: Li, H., Guo, P., Gao, W., Normand, C., and Harding, R.
Publication year:: 2023
DOI:: 10.1016/j.jcpo.2022.100371

5. Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease

Author:: Eagleson, K. J., McCombs, D., Gerlich, T. M., Justo, R. N., Kasparian, N. A., and Bora, S.
Publication year:: 2023
DOI:: 10.1093/jpepsy/jsad015

6. Assessment of patient-reported outcome measures used in corneal transplantation: a systematic review

Author:: Prem Senthil, M. Chakraborty, R. Lim, J.
Publication year:: 2022
DOI:: 10.1080/08164622.2022.2033106.

7. Caregiver Burden and Dementia: A Systematic Review of Self-Report Instruments

Author:: Tu, J. Y., Jin, G., Chen, J. H., and Chen, Y. C.
Publication year:: 2022
DOI:: 10.3233/jad-215082

8. Evaluation of Psychometric Properties of Hardiness Scales: A Systematic Review

Author:: Sharif Nia, H., Froelicher, E. S., Hosseini, L., and Ashghali Farahani, M.
Publication year:: 2022
DOI:: 10.3389/fpsyg.2022.840187

9. Implementation of patient-reported outcome measures in a heart transplant recipient registry: First step toward a patient-centered approach

Author:: Mahmoudi, R., Moitie, T., Dorent, R., Guillemin, F., and Couchoud, C.
Publication year:: 2022
DOI:: 10.1111/ctr.14708

10. Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN

Author:: Carlton, J. and Powell, P. A.
Publication year:: 2022
DOI:: 10.1186/s12955-022-01964-4

11. Needs assessment instruments for family caregivers of cancer patients receiving palliative care: a systematic review

Author:: Cheng, Q., Xu, B., Ng, M. S. N., Zheng, H., and So, W. K. W.
Publication year:: 2022
DOI:: 10.1007/s00520-022-07122-2

12. Patient-reported outcome measures in pediatric surgery - A systematic review

Author:: Besner, A. S., Ferreira, J. L., Nikki, O., Gaffar, R., Guadagno, E., Emil, S., and Poenaru, D.
Publication year:: 2022
DOI:: 10.1016/j.jpedsurg.2021.12.036

13. Patient-reported outcome measures suitable for quality of life/well-being assessment in multisectoral, multinational and multiperson mental health economic evaluations

Author:: Łaszewska, A., Helter, T. M., Nagel, A., Perić, N., and Simon, J.
Publication year:: 2022
DOI:: 10.1136/ebmental-2021-300334

14. Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures

Author:: Mast, B. T., Ertle, E. M., Kolanowski, A., Mountain, G., Moniz-Cook, E., and Halek, M.
Publication year:: 2022
DOI:: 10.1002/trc2.12316

15. A psychometric appraisal of positive psychology outcome measures in use with carers of people living with dementia: a systematic review

Author:: Pione, R. D., Spector, A., Cartwright, A. V., and Stoner, C. R.
Publication year:: 2021
DOI:: 10.1017/s1041610220003464

16. Assessing unmet needs in advanced cancer patients: a systematic review of the development, content, and quality of available instruments

Author:: Rimmer, B., Crowe, L., Todd, A., and Sharp, L.
Publication year:: 2021
DOI:: 10.1007/s11764-021-01088-6

17. Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

Author:: Shah, R., Ali, F. M., Finlay, A. Y., and Salek, M. S.
Publication year:: 2021
DOI:: 10.1186/s12955-021-01819-4

18. Measures used to assess impact of providing care among informal caregivers of persons with stroke, spinal cord injury, or amputation: a systematic review

Author:: Scholten, E. W. M., Hillebregt, C. F., Ketelaar, M., Visser-Meily, J. M. A., and Post, M. W. M.
Publication year:: 2021
DOI:: 10.1080/09638288.2019.1641847

19. Outcome Measures Following Critical Illness in Children With Disabilities: A Scoping Review

Author:: Heneghan, J. A., Sobotka, S. A., Hallman, M., Pinto, N., Killien, E. Y., Palumbo, K., Murphy Salem, S., Mann, K., Smith, B., Steuart, R., Akande, M., and Graham, R. J.
Publication year:: 2021
DOI:: 10.3389/fped.2021.689485

20. Coping Assessment Tools in the Family Caregivers of Patients with Breast Cancer: A Systematic Review

Author:: Jahani Sayad Noveiri, M., Shamsaei, F., Khodaveisi, M., Vanaki, Z., and Tapak, L.
Publication year:: 2020
DOI:: 10.2147/bctt.S240928

21. Living with Chronic Illness from the Family Perspective:An Integrative Review

Author:: Ambrosio, L., Navarta-Sánchez, M. V., Carvajal, A., and Garcia-Vivar, C.
Publication year:: 2020
DOI:: 10.1177/1054773820947983

22. Patient-reported Outcome Measures (PROMs) in Pediatric Non-Malignant Hematology: A Systematic Review

Author:: Kinahan, J. Y., Graham, J. M. I., Hébert, Y. V., Sampson, M., O'Hearn, K., and Klaassen, R. J.
Publication year:: 2020
DOI:: 10.1097/mph.0000000000001984

23. A critical review of patient and parent caregiver oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in spinal muscular atrophy

Author:: Messina, S., Frongia, A. L., Antonaci, L., Pera, M. C., Coratti, G., Pane, M., Pasternak, A., Civitello, M., Montes, J., Mayhew, A., Finkel, R., Muntoni, F., Mercuri, E., and group, I. SMAc
Publication year:: 2019
DOI:: 10.1016/j.nmd.2019.10.001

24. Evidence-Base Update for Parenting Stress Measures in Clinical Samples

Author:: Holly, L. E., Fenley, A. R., Kritikos, T. K., Merson, R. A., Abidin, R. R., and Langer, D. A.
Publication year:: 2019
DOI:: 10.1080/15374416.2019.1639515

25. Measures for social support in raising a child with a disability: A scoping review

Author:: Mantri-Langeveldt, A., Dada, S., and Boshoff, K.
Publication year:: 2019
DOI:: 10.1111/cch.12646

26. Tools Measuring Quality of Death, Dying, and Care, Completed after Death: Systematic Review of Psychometric Properties

Author:: Kupeli, N., Candy, B., Tamura-Rose, G., Schofield, G., Webber, N., Hicks, S. E., Floyd, T., Vivat, B., Sampson, E. L., Stone, P., and Aspden, T.
Publication year:: 2019
DOI:: 10.1007/s40271-018-0328-2

27. A systematic review of patient-reported outcome measures in paediatric otolaryngology

Author:: Powell, J., Powell, S., and Robson, A.
Publication year:: 2018
DOI:: 10.1017/s0022215117002420

28. Patient-reported outcome measures in oral lichen planus: A comprehensive review of the literature with focus on psychometric properties and interpretability

Author:: Wiriyakijja, P., Fedele, S., Porter, S. R., Mercadante, V., and Ni Riordain, R.
Publication year:: 2018
DOI:: 10.1111/jop.12604

29. Utilization of a Wide Array of Nonvalidated Outcome Scales in Pediatric Orthopaedic Publications: Can't We All Measure the Same Thing?

Author:: Truong, W. H., Price, M. J., Agarwal, K. N., Suryavanshi, J. R., Somasegar, S., Thompson, M., Fabricant, P. D., and Dodwell, E. R.
Publication year:: 2018
DOI:: 10.1097/bpo.0000000000001263

30. A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients

Author:: Tanco, K., Park, J. C., Cerana, A., Sisson, A., Sobti, N., and Bruera, E.
Publication year:: 2017
DOI:: 10.1017/s1478951516000079

31. Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations

Author:: Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O'Brien, J. T., Mountain, G., Banerjee, S., Woods, B., Perneczky, R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth, G., Featherstone, K., Fox, C., Goodman, C., Jones, R., Lamb, S., Moniz-Cook, E., Schneider, J., Shepperd, S., Surr, C., Thompson-Coon, J., Ballard, C., Brayne, C., Burns, A., Clare, L., Garrard, P., Kehoe, P., Passmore, P., Holmes, C., Maidment, I., Robinson, L., and Livingston, G.
Publication year:: 2017
DOI:: 10.1371/journal.pone.0179521

32. Informal caregiving in COPD: A systematic review of instruments and their measurement properties

Author:: Cruz, J., Marques, A., Machado, A., O'Hoski, S., Goldstein, R., and Brooks, D.
Publication year:: 2017
DOI:: 10.1016/j.rmed.2017.05.002

33. Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments

Author:: Sampogna, F., Finlay, A. Y., Salek, S. S., Chernyshov, P., Dalgard, F. J., Evers, A. W. M., Linder, D., Manolache, L., Marron, S. E., Poot, F., Spillekom-van Koulil, S., Svensson, A., Szepietowski, J. C., Tomas-Aragones, L., and Abeni, D.
Publication year:: 2017
DOI:: 10.1111/jdv.14288

34. Patient- and Caregiver-Reported Assessment Tools for Palliative Care: Summary of the 2017 Agency for Healthcare Research and Quality Technical Brief

Author:: Aslakson, R. A., Dy, S. M., Wilson, R. F., Waldfogel, J., Zhang, A., Isenberg, S. R., Blair, A., Sixon, J., Lorenz, K. A., and Robinson, K. A.
Publication year:: 2017
DOI:: 10.1016/j.jpainsymman.2017.04.022

35. Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review

Author:: Stansfeld, J., Stoner, C. R., Wenborn, J., Vernooij-Dassen, M., Moniz-Cook, E., and Orrell, M.
Publication year:: 2017
DOI:: 10.1017/S1041610217000655

36. Measuring the impact of informal elderly caregiving: a systematic review of tools

Author:: Mosquera, I., Vergara, I., Larranaga, I., Machon, M., del Rio, M., and Calderon, C.
Publication year:: 2016
DOI:: 10.1007/s11136-015-1159-4

37. Psychometric properties of carer-reported outcome measures in palliative care: A systematic review

Author:: Michels, C. T., Boulton, M., Adams, A., Wee, B., and Peters, M.
Publication year:: 2016
DOI:: 10.1177/0269216315601930

38. Assessing the needs of informal caregivers to cancer survivors: a review of the instruments

Author:: Prue, G., Santin, O., and Porter, S.
Publication year:: 2015
DOI:: 10.1002/pon.3609

39. Systematic review of tools to measure outcomes for young children with autism spectrum disorder

Author:: McConachie, Helen, Parr, Jeremy R., Glod, Magdalena, Hanratty, Jennifer, Livingstone, Nuala, Oono, Inalegwu P., Robalino, Shannon, Baird, Gillian, Beresford, Bryony, Charman, Tony, Garland, Deborah, Green, Jonathan, Gringras, Paul, Jones, Glenys, Law, James, Le Couteur, Ann S., Macdonald, Geraldine, McColl, Elaine M., Morris, Christopher, Rodgers, Jacqueline, Simonoff, Emily, Terwee, Caroline B., and Williams, Katrina
Publication year:: 2015
DOI:

40. Upper limb function in everyday life of children with cerebral palsy: description and review of parent report measures

Author:: Wallen, Margaret and Stewart, Kirsty
Publication year:: 2015
DOI:

41. Patient Reported Outcomes Instruments in Schizophrenia: A Review of Psychometric Properties

Author:: Cadi-Soussi, Aurelie Millier, Emilie Clay, Insaf Charaf, Deven Chauhan, Venkatesha Murthy, Mondher Toumi, and Nadia
Publication year:: 2014
DOI:

42. Condition-specific quality of life questionnaires for caregivers of children with pediatric conditions: a systematic review

Author:: Chow, M. Y., Morrow, A. M., Cooper Robbins, S. C., and Leask, J.
Publication year:: 2013
DOI:: 10.1007/s11136-012-0343-z

43. The measurement of burden of care in serious mental illness: a qualitative review

Author:: Vella, S. L. and Pai, N.
Publication year:: 2013
DOI:: 10.1177/0004867412468494

44. A review of instruments developed to measure outcomes for carers of people with mental health problems

Author:: Harvey, K., Catty, J., Langman, A., Winfield, H., Clement, S., Burns, E., White, S., and Burns, T.
Publication year:: 2008
DOI:

45. Parental functioning in the context of adolescent chronic pain: a review of previously used measures

Author:: Jordan, A., Eccleston, C., and Crombez, G.
Publication year:: 2008
DOI:

46. Measures used to assess burden among caregivers of stroke patients: a review

Author:: Visser-Meily, J. M., Post, M. W., Riphagen, II, and Lindeman, E.
Publication year:: 2004
DOI:: 10.1191/0269215504cr776oa

47. Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers

Author:: Deeken, J. F., Taylor, K. L., Mangan, P., Yabroff, K. R., and Ingham, J. M.
Publication year:: 2003
DOI:: 10.1016/s0885-3924(03)00327-0

48. Quality of life instruments for caregivers of patients with cancer - A review of their psychometric properties

Author:: Edwards, B. and Ung, L.
Publication year:: 2002
DOI:: Doi 10.1097/00002820-200210000-00002

49. Use of family proxies in quality of life research for cancer patients at the end of life: a literature review

Author:: Tang, S. T. and McCorkle, R.
Publication year:: 2002
DOI:: 10.1081/cnv-120005928

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